Discovery Channel Narcolepsy Video

Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story.  Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…

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Narcolepsy on Discovery Channel Featuring Julie Flygare

This Saturday, December 8, 2012 at 8 a.m. (EST) – Discovery Channel airs Narcolepsy: New Strategies for Diagnosis and Treatment, featuring my story, along with a panel of experts and a second patient perspective. The program will air a second time on Saturday, Dec. 22, 2012 at 8 a.m. (EST).  It was an honor to work…

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Things I love: Powerful Poetry

Tears on my faceby: Elizabeth Olsen Tears on my face,No place to go Mind stuck in time, Body out of control. Burning inside A feeling I died Things that are not there Sounds I can share Hope is fleeting Time defeating Who would dare A battle unfair Light traps the dream I can not scream…

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Roanoke Valley Awakens to Narcolepsy

  Mother Diantha with daughters Haven and Seanna On the last day of school, when a 4th grader passed a hat around the classroom, no one blinked. Instead, each 4th grader reached into their pockets and gave what they had – mostly coins. Together, they proudly collected about $15, believing that small change could lead…

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Follow Your Dreams: REM Sleep, Intuition and Oprah Magazine

I’ve learned to trust my “gut feeling” in sticky situations. Yet how is it that my body’s natural response is smarter than my well-educated rational mind?! This month, O: The Oprah Magazine answers this question in a fascinating article, “The Science of Intuition: An eye-opening guide to your sixth sense,” by Annie Murphy Paul (August…

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Wide Awake and Dreaming

With 16 days until the Marathon, I’ve decided to discuss an aspect of narcolepsy I’ve never discussed here on this blog.  One evening in June of 2007, while sleeping overnight at my dad’s house, I awoke in the middle of the night to the repeated ringing of the doorbell.  Hours earlier, I’d fallen asleep on…

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