Children with Narcolepsy
Book Event with Washington DC Narcolepsy Community
This Saturday, Jan. 19, 2013, from 12:30 – 3:00 p.m., my book will be featured at the Narcolepsy & Hypersomnia Support Group of the Greater Washington DC Area. The meeting is open to all people with narcolepsy or hypersomnia and their supporters. I will be selling and signing books. We can discuss topics from my book…
Read MoreDon’t Mess With My Sleep: Makenna’s Walk for Narcolepsy Research
At age five, Makenna was a healthy bright child in Kindergarten, with a great sense of humor and a charming magnetic personality. Under the Weather:In February 2011, Makenna came down with pneumonia. She was very sick and admitted to the Children’s Hospital for IV Antibiotics. She recovered from the infection, but never got her strength…
Read MoreNice News Segment on Narcolepsy with Cataplexy
This segment features a lovely young woman, Kay Underwood, living with narcolepsy and cataplexy. GMTV accurately and effectively highlighted narcolepsy with cataplexy. Hip hip hurray! This video shows Kay collapsing while laughing – but she is not falling over asleep – she’s falling over with the paralysis of dream sleep while awake. Why is Kay Underwood collapsing when she…
Read MoreABC WTVD Reports on Narcolepsy and AVALON Magazine to Raleigh, NC Area
ABC WTVD Channel 11 in Raleigh, NC aired an in-depth report about narcolepsy today at 4pm. The news story featured my personal hero, Haven, and the articles I authored recently published in AVALON Magazine. Watch here. For more, check out AVALON Magazine’s Holiday Dream Issue for sale onlineand at bookstores including Barnes & Nobles, Books-A-Million, Doubleday,…
Read MoreForget the Birds and the Bees, It’s Time to Talk about Zzz’s
The SLEEP talk is the new sex talk, folks. MTV True Life I Have Narcolepsy sheds light on teen sleep in America. While many young Americans suffer from undiagnosed chronic sleep disorders, the epidemic of sleep issues amongst teens is even more pervasive. A startling 70% of high school students are not…
Read MoreReview: MTV True Life I Have Narcolepsy Shines Bright Light on Narcolepsy and Cataplexy
I turned on my TV and cataplexy starred back at me. I smiled. The program information for MTV’s True Life “I Have Narcolepsy” described: Two young women, Julie and Katie, discuss in detail the challenges they have had to endure after being diagnosed with cases of Narcolepsy, which causes extreme sleepiness, and Cataplexy, which causes sudden…
Read MoreInfluenza A (including H1N1 infection) May Trigger Narcolepsy
What causes narcolepsy? I wasn’t born with narcolepsy but developed it in my late teens to early 20’s. Evidence continues to suggest that influenza A (including H1N1) and other winter airway infections play a significant role in narcolepsy onset. However, the role of H1N1 vaccination is a different story, suggests a recent study led by…
Read MoreRoanoke Valley Awakens to Narcolepsy
Mother Diantha with daughters Haven and Seanna On the last day of school, when a 4th grader passed a hat around the classroom, no one blinked. Instead, each 4th grader reached into their pockets and gave what they had – mostly coins. Together, they proudly collected about $15, believing that small change could lead…
Read MoreIntroduction: From Where I Stand
There are times when I can’t walk from one side of a room to the other without falling to the ground. I have a disorder called narcolepsy with cataplexy, and cataplexy is a rare form of temporary muscle paralysis that can lead to full body collapse. There is no cure for this disorder at this…
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