Riding the Waves of Narcolepsy: Julie Flygare Narcolepsy Awareness Video #19

by julie on July 21, 2013

I’m so thrilled to share this video documenting my recent waterskiing adventure. Watch below or on YouTube.

Thank you to Alex Withrow for his incredible video production skills and for believing in me. I never would’ve attempted this without his encouragement. Thank you to Brent, Maria and Owenmy boat crew and cheering squad extraordinaire. This was the gift of a lifetime. 

Watch more vidoes: 

Watch Video #18: Unveiling My Narcolepsy Infographic
Watch Video #17: Narcolepsy & Exercise
Watch Video #16: Debunking the Narcolepsy Myth

Watch Video #15: Narcolepsy Chosen for FDA Initiative

Watch Video #14: Tips for Students with Narcolepsy

Watch Video #13: School Accommodations with Narcolepsy
Watch video #12: National Sleep Walk 2013
Watch video #11: Being Your Own Health Advocate 
Watch Video #10: Hypnagogic Hallucinations and Sleep Paralysis
Watch Video #9: Why I Wrote a Memoir: The Evolution of Wide Awake and Dreaming
Watch Video #8: Introduction to Wide Awake and Dreaming: Author’s Interview 
Watch Video #7: Talking about Narcolepsy during the Holidays
Watch Video #6: How Do I Handle Narcolepsy Diagnosis
Watch Video #5: Communicating about Cataplexy
Watch Video #4: What is Cataplexy?
Watch Video #3: Communicating Invisible Symptoms
Watch Video #2: Excessive Daytime Sleepiness
Watch Video #1: Introduction to Narcolepsy 

{ 3 comments… read them below or add one }

Alex Withrow July 24, 2013 at 3:47 pm

Love this video. Congrats for never letting your narcolepsy keep you down!

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julie July 24, 2013 at 4:36 pm

Thank you so much for your support, Alex!

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Mark Norton July 27, 2013 at 5:36 am

Hi, I just found you when I googled “how to live with narcolepsy”. I was just diagnosed with narcolepsy without cataplexy in March. I watched most of your videos and just wanted to say thank you. I didn’t know what it was until my diagnoses. It is difficult to explain to others. My father is in the nursing home about a four hour drive away. Last time I went to see him I think I fell asleep 15 times while driving. I haven’t been back since then, I’m not sure he understands. I’m doing better now, taking 125mg nuvigil. Anyway, thanks you are doing a good and needed thing.

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