From Heartbreak Hill to Capitol Hill

by julie on October 6, 2010

 

In Boston, I took on Heartbreak Hill. In Washington DC, I’m taking on Capitol Hill!

Tomorrow, I will be visiting my Congressman as part of Narcolepsy Network’s Advocacy Day on Capitol Hill.  To see the official Press Release, click here!

Over the last year, I’ve talked about my narcolepsy A  LOT – telling anyone who is kind enough to listen. Yet tomorrow’s meeting still intimidates me. Will I get my point across? Will my medication make me shake?

When I ran the Boston Marathon, I couldn’t control the outcome. Much like the marathon, I don’t know how tomorrow’s challenge will go. Yet, I’ve prepared myself like any athlete.

I’ve practiced communicating about my narcolepsy hundreds of times this past year – in bars, at parties, on the bus. I’ve explained narcolepsy to close friends and perfect strangers. I have my outfit picked out. I have my talking points and statistics memorized.

I must trust my instinct and experience will carry me. I must believe that when the time comes (2pm on the dot), I will rise to the occassion and bring my A game.

I will be sure to report back here afterwards!
Until then,
REMRunner

To read how the Advocacy Day went, click here.

{ 6 comments… read them below or add one }

NarcoGirl October 7, 2010 at 8:53 am

Good Luck! You'll be on my prayer list today. Take a deep breath…you'll do great!!!

Reply

Tricia October 7, 2010 at 10:33 am

I look forward to hearing from you after the visit to the Hill. Go and get em Julie.

Reply

Melissa October 7, 2010 at 11:32 am

I'll be thinking of you today! You can do it! 🙂

Reply

Amanda McGrath October 7, 2010 at 7:07 pm

GOOD LUCK!

Reply

Amelia Swabb October 7, 2010 at 10:16 pm

good luck!!

Reply

Gary Johnson October 8, 2010 at 9:53 am

Great job on your narcolepsy advocacy efforts. You are an inspiration! Can't wait to here how it went on Capitol Hill.

Reply

Leave a Comment

Previous post:

Next post: