From Heartbreak Hill to Capitol Hill


In Boston, I took on Heartbreak Hill. In Washington DC, I’m taking on Capitol Hill!

Tomorrow, I will be visiting my Congressman as part of Narcolepsy Network’s Advocacy Day on Capitol Hill.  To see the official Press Release, click here!

Over the last year, I’ve talked about my narcolepsy A  LOT – telling anyone who is kind enough to listen. Yet tomorrow’s meeting still intimidates me. Will I get my point across? Will my medication make me shake?

When I ran the Boston Marathon, I couldn’t control the outcome. Much like the marathon, I don’t know how tomorrow’s challenge will go. Yet, I’ve prepared myself like any athlete.

I’ve practiced communicating about my narcolepsy hundreds of times this past year – in bars, at parties, on the bus. I’ve explained narcolepsy to close friends and perfect strangers. I have my outfit picked out. I have my talking points and statistics memorized.

I must trust my instinct and experience will carry me. I must believe that when the time comes (2pm on the dot), I will rise to the occassion and bring my A game.

I will be sure to report back here afterwards!
Until then,

To read how the Advocacy Day went, click here.


  1. NarcoGirl on October 7, 2010 at 8:53 am

    Good Luck! You'll be on my prayer list today. Take a deep breath…you'll do great!!!

  2. Tricia on October 7, 2010 at 10:33 am

    I look forward to hearing from you after the visit to the Hill. Go and get em Julie.

  3. Melissa on October 7, 2010 at 11:32 am

    I'll be thinking of you today! You can do it! 🙂

  4. Amanda McGrath on October 7, 2010 at 7:07 pm


  5. Amelia Swabb on October 7, 2010 at 10:16 pm

    good luck!!

  6. Gary Johnson on October 8, 2010 at 9:53 am

    Great job on your narcolepsy advocacy efforts. You are an inspiration! Can't wait to here how it went on Capitol Hill.

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