Posts Tagged ‘Sleep’
Viral Narcolepsy with Cataplexy Video
A video of a young woman with narcolepsy and cataplexy has gone viral. Watch below or on YouTube. This is a powerful video and I am grateful to Sarah Elizabeth for bravely sharing her experience! Sarah Elizabeth is primarily experiencing a narcolepsy symptom called cataplexy here. Cataplexy is a sudden loss of muscle tone, resulting in…
Read MoreRead My HuffPost Article: “I’m Not Looking To Be Saved From Narcolepsy”
Check out my provocative HuffPost article: “I’m Not Looking To Be Saved”! It’s a dream come true to write on HuffPost, adapting this post from my blog. I can’t wait to raise more awareness via this popular website. Please like and share. Also, check out “Tweeting My Way Through Narcolepsy” on HuffPost by the amazing…
Read MoreSleep Health & Safety, Congressional Briefing April 10, 2014
On Thursday April 10, 2014 at 12 noon, the Sleep Research Society (SRS) and the American Academy for Sleep Medicine (AASM) will be hosting an insightful congressional briefing on sleep health and safety in B-340 RAYBURN HOUSE OFFICE BUILDING. Congressman Mike Honda (D-CA-17) will also be making remarks at this Congressional briefing. SRS leadership will speak…
Read MoreRaising Narcolepsy Awareness at UCLA Medical School
Last Friday, Jan. 31, I shared my inspirational narcolepsy story at UCLA Medical School. In one hour, we laughed, cried and changed perceptions about narcolepsy in future doctors. The medical students had recently studied narcolepsy in their curriculum – briefly learning the symptoms and watching a few YouTube videos. I was honored to add my patient…
Read MoreThings I Love: Fun Facts about Sleep & the Brain
Science is COOL! I stumbled across these fun videos by The Infographics Show. I especially loved the one about the Brain. “Brains have a similar texture to tofu.” Yum… Enjoy!
Read MoreDiscovery Channel Narcolepsy Video
Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story. Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…
Read MoreSecond Narcolepsy Awareness Video from the NN Conference: Communicating about Sleepiness
I’m excited to release my second narcolepsy awareness video, shot at the 2012 Narcolepsy Network (NN) Annual Conference in Cleveland, OH. Thank you for all those who attended my sessions! In this video, I re-cap my conference experience and offer a few strategies for communicating about the excessive daytime sleepiness (EDS) of narcolepsy. Watch below…
Read MoreJulie Flygare Launches Narcolepsy Awareness Video Campaign
I’m so thrilled to launch my narcolepsy awareness video series. I’ve dreamed of this project for many moons. It’s surreal to see it through. Watch my introductory video here or on YouTube. Thank you so much for checking out my video! I will be adding exciting new content regularly, so check back soon. Many thanks…
Read MoreSleep’s Choice: Living with Narcolepsy’s Excessive Daytime Sleepiness
Every day, at least once, but usually twice, my head gets heavy, as if a weight sits on my skull, and I know, right then, that sleep is coming. If I don’t put my head down immediately, the heaviness only gets heavier. My joints begin to ache and a wave of nausea comes over me.…
Read MoreDon’t Mess With My Sleep: Makenna’s Walk for Narcolepsy Research
At age five, Makenna was a healthy bright child in Kindergarten, with a great sense of humor and a charming magnetic personality. Under the Weather:In February 2011, Makenna came down with pneumonia. She was very sick and admitted to the Children’s Hospital for IV Antibiotics. She recovered from the infection, but never got her strength…
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