Listen Now: Social Experience of Narcolepsy on Sleep Junkies Podcast
“I remember keeping [my narcolepsy] private and always feeling like it was this thing sitting at the back of my throat that I wanted to share, but just stopping myself, remembering ‘you’ll get a bad reaction, this person won’t understand.'” – Julie Flygare, Sleep Junkies podcast
“So you went from something being a secret to the outside world, and then you kind of switched on the turbo, started a blog, wrote your book, and then to Project Sleep… From one extreme to the other and there seems to be no stopping what you’re doing.” – Jeff Mann, Sleep Junkies
I was honored to be interviewed recently for the Sleep Junkies podcast – listen here! Please share this with friends to inform your community on what it’s REALLY like to live with narcolepsy. The psychosocial impact, stigma and undue jokes are a huge part of living with narcolepsy, yet under-discussed.
https://sleepjunkies.com/narcolepsy-social-experience/
Thank you, Sleep Junkies and Jeff Mann for inviting me to share my experience and Project Sleep’s efforts to build a brighter future. I’ve enjoyed getting to know Jeff over the past year, he published this neat article about my efforts last year.