Washington DC
A Moment I’ll Cherish Forever: Meeting my Representative Adam Schiff
On Tuesday, Feb. 10th, I had the opportunity to meet my Representative, Congressman Adam Schiff and thank him in-person for championing the sleep community priorities in Congress for the past three years. I was in Washington, DC for Project Sleep and the Sleep Research Society’s February Hill Day on Monday, Feb. 9th. See our event…
Read MoreSleep Advocacy & Narcolepsy Awareness in Washington DC
“One day you finally knew what you had to do, and began…” — Mary Oliver, The Journey Ten years ago, I ended my silence. I started writing a memoir about narcolepsy and moved to DC to begin advocating. The last decade has been a whirlwind, the lowest of lows and highest of highs, and all…
Read MoreCare About Research? Urge New Congress to Support Sleep & Sleep Disorders Today
Friends in the U.S., if you care about narcolepsy research (or any other area of sleep and sleep disorders research), you can play an important role in ensuring that this research is supported by our federal government. While private fundraising for research is wonderful and important too, private fundraising cannot replace the need for federal…
Read MoreToday: Please Ask Your Representative to Co-Sign Narcolepsy Research Letter
Hi friends! I’m so excited to share an amazing opportunity to support critical narcolepsy research THIS WEEK! My Representative, Congressman Schiff of California, is preparing to send a letter to NIH inquiring on the current size, scope, and direction of the narcolepsy portfolio (See Letters). This letter will encourage NIH to support the full spectrum of narcolepsy…
Read MoreSleep Health & Safety, Congressional Briefing April 10, 2014
On Thursday April 10, 2014 at 12 noon, the Sleep Research Society (SRS) and the American Academy for Sleep Medicine (AASM) will be hosting an insightful congressional briefing on sleep health and safety in B-340 RAYBURN HOUSE OFFICE BUILDING. Congressman Mike Honda (D-CA-17) will also be making remarks at this Congressional briefing. SRS leadership will speak…
Read MoreREM Runner’s Top 9 Inspiring Female Health Advocates Part I
In honor of Women’s History Month, I am profiling nine female health advocates who inspire me to follow my dreams. These women are trailblazers – leading the way for other women to optimize their health and triumph over adversity. Here are the first three: 1. Kathrine Switzer, First Woman to Enter the Boston Marathon Less than 50…
Read MoreSign White House Sleep Petition Today!
Please join me in signing the Official White House Sleep Disorder and Sleep Health Awareness Petition! The petition poignantly states:“We petition the Obama administration to recognize the serious impact that sleep disorders have on life, help raise awareness of sleep disorders, promote sleep health for all ages, and to encourage naps over harmful energy drinks for…
Read MoreJulie Flygare Represents Narcolepsy at FDA
On Wednesday, Feb. 27, 2013, I attended an update meeting on FDA’s Patient Focused Drug Development Initiative. Last fall, I led the campaign urging FDA to include narcolepsy in this 20 disease innovative program (read more here). I testified at the FDA hearing and hundreds of narcolepsy advocates sent in comments of support. FDA received…
Read MoreNational Sleep Walk 2013 Rallies East Coast Sleep Community And Inspires Walks Across the Nation
My favorite time of the year is quickly approaching – Sleep Walk time!! Over 120 participants are registered for the National Sleep Walk in Washington DC on Sunday March 3, 2013 at 10:00 a.m. Participants will meet at the Lincoln Memorial Reflecting Pool Steps to raise awareness about sleep disorders and healthy sleep for all…
Read MoreNarcolepsy in the Classroom – Web Broadcast Event
Families of children and teens with narcolepsy are invited to attend this special event on Saturday February 9th from 2-4 p.m. (EST) at Children’s National Medical Center in Washington D.C. LIVE INTERNATIONAL BROADCAST: You are invited to participate in a live internet broadcast as experts speak on “Narcolepsy in the Classroom” on Saturday Feb 9, 2013 from…
Read More