Video
Mt Washington Road Race 2012 Video
Pictures are worth a thousand words. Here’s a short video re-capping my quest to honor my dad in the Mount Washington Road Race 2012 while living with narcolepsy. Music: “We Can” by Jesse Ruben. This song helped me up the mountain. The artist generously gave me permission to use it in my video, so…
Read More“The Moment I Knew I Needed More Sleep…” In Response to Arianna Huffington’s Post
Arianna Huffington is my hero. In a recent post, she shared the story of the moment she realized she needed more sleep and asked, “What was the moment you knew you needed to get more sleep? I want to hear your story.” Here’s mine: “The moment I knew I needed more sleep was when I woke up…
Read MoreSLEEP WALK 2012 Video
Yes, we got our groove on during SLEEP WALK 2012! Check it out: Thank you, Ethan Crawford for creating this awesome video! Thank you, Suzworks‘ Suzannah Weiss and Sue Dambrauskas for getting the party started with Nia. More fun videos here. More about Wake Up Narcolepsy here.
Read MoreNBC Washington Features Julie Flygare in Narcolepsy Report
Just 15 minutes into the 5 o’clock news today, NBC Washington featured an in-depth report about my experience with narcolepsy and cataplexy. Please share to help raise awareness! Watch here: View more videos at: http://nbcwashington.com. Description:“Julie Flygare had the world in the palm of her hand. She was in law school, she was an avid…
Read MoreMTV True Life I Have Narcolepsy Airs Saturday Nov 5, 2011
Grab the popcorn and remote! MTV True Life “I Have Narcolepsy” airs this Saturday, November 5th at 3pm (EST). This show features two brave women’s accurate and striking experiences with narcolepsy and cataplexy. Read more here. Thank you to Julie, Katy, Robby and MTV for raising invaluable awareness about narcolepsy!
Read MoreReview: MTV True Life I Have Narcolepsy Shines Bright Light on Narcolepsy and Cataplexy
I turned on my TV and cataplexy starred back at me. I smiled. The program information for MTV’s True Life “I Have Narcolepsy” described: Two young women, Julie and Katie, discuss in detail the challenges they have had to endure after being diagnosed with cases of Narcolepsy, which causes extreme sleepiness, and Cataplexy, which causes sudden…
Read MoreREM Runner Julie Flygare Receives National Public Awareness Award
While in Las Vegas for the Narcolepsy Network Conference, I was awarded the “Public Awareness Award” 2011 from this national narcolepsy organization on October 15, 2011. I’m incredibly honored to receive this award. Raising awareness about narcolepsy is a joy and privilege. I look forward to continuing my advocacy work in years to come.…
Read MoreSLEEP WALK 2011
I’ll never forget today. I’ve dreamed of a Sleep Walk for the past couple years. Today – my dreams came true. Yesterday, I visited craft and party stores in preparation for SLEEP WALK 2011. Although I love festive creative projects – a knot clenched tighter and tighter in my stomach as…
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