Video
Join Julie for International Narcolepsy Broadcast on Suddenly Sleepy Saturday
Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below…
Read MoreOfficial NARCOLEPSY: NOT ALONE T-shirts!
The official NARCOLEPSY: NOT ALONE t-shirts are here! Raise awareness about narcolepsy while also supporting a good cause. Proceeds support Project Sleep, my new non-profit raising awareness about sleep health and sleep disorders. Purchase by Jan. 26, 2014. View/Order T-Shirts – Available in three styles: men’s/unisex, women’s fit and youth sizes – ONLY for sale…
Read MoreNARCOLEPSY: NOT ALONE Worldwide Update & Inviting My Hero, Ellen DeGeneres to Join Us!
Five months ago today, I launched the NARCOLEPSY: NOT ALONE campaign. I’m so excited to share this worldwide video update: Creating this video brought tears to my eyes – we had to stop filming momentarily so I could regain my composure. Thank you for standing tall and proud with me – helping to prove that…
Read MoreRandom Remmie Explains Narcolepsy & Sleep Cycle
“Narcolepsy explained so simply a caveman could understand it.” You may remember Random Remmie from this previous post, but recently she’s became a movie star, featured in two amazing educaitonal videos. The purpose of these videos is to explain narcolepsy to classmates of children with narcolepsy so they can better understand. Please take a…
Read MoreTreatment for Narcolepsy: Julie Flygare Narcolepsy Awareness Video #22
I’m so thrilled to release my 22nd awareness video, providing an overview of the treatment options for narcolepsy, emphasizing the importance of naps, lifestyle changes and having a strong support system. Watch here or on YouTube: Thank you for checking out my video. A big thank you to the amazing Alex Withrow for his pro video…
Read MoreThe Path to Narcolepsy Diagnosis: Julie Flygare Narcolepsy Awareness Video #21
I’m thrilled to release my 21st narcolepsy awareness video today, describing the path to a narcolepsy diagnosis. Watch below or on YouTube. Thank you so much for watching my video. Come back soon for more! A big thank you to Alex Withrow for his expert video production skils, you make me look good. 🙂 Watch…
Read MoreNARCOLEPSY: NOT ALONE Campaign Launch
Lost and alone. We’ve all been there. Today, I’m launching the NARCOLEPSY: NOT ALONE awareness campaign – to prove that narcolepsy is REAL and that we are NOT ALONE. People with narcolepsy AND supporters are invited to submit photos for the GALLERY & MAP. Watch introductory video: Join Us: People with narcolepsy AND supporters around the…
Read MoreRiding the Waves of Narcolepsy: Julie Flygare Narcolepsy Awareness Video #19
I’m so thrilled to share this video documenting my recent waterskiing adventure. Watch below or on YouTube. Thank you to Alex Withrow for his incredible video production skills and for believing in me. I never would’ve attempted this without his encouragement. Thank you to Brent, Maria and Owen – my boat crew and cheering squad…
Read MoreNarcolepsy Infographic: What Is Narcolepsy?
I’m so excited to release my narcolepsy infographic! This is the FIRST infographic dedicated to raising awareness about narcolepsy. Please share! Unveiling Narcolepsy Infographic Video: Narcolepsy Infographic: DOWNLOAD FILE Thank you to my amazing graphic designer, Anthony Nesossis. Thank you to Alex Withrow for his pro video production! Read about the making of the infographic here.…
Read MoreFilming Narcolepsy TV Show at Montefiore in NYC
This week, I had the honor of traveling to New York City for the filming of a PBS narcolepsy documentary. My interview took place at Montefiore Medical Center’s Sleep-Wake Disorders Center, a nationally-renowned narcolepsy center located in the Bronx, NY. Tuesday morning, I traveled to Montefiore to meet the producer and film crew of Healthy…
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