Sleep Blog
Jumping Into a New Chapter of My Journey
Hi friends! I’m so beyond excited to share that as of February 12, 2018, I made a huge career change and took on a new role as President & Chief Executive Officer (CEO) of Project Sleep! Read the full announcement here. Wait, what’s the difference? Some people have said they thought I was already serving in this…
Read MoreLaunching Project Sleep’s #BeTheLight Campaign for #GivingTuesday and Holidays
Exciting news! I’m thrilled to share that Project Sleep just launched our #BeTheLight campaign in preparation for #GivingTuesday (Nov 28) and the holiday season. Project Sleep has a bold goal to raise $25,000 by December 31, 2017. The #BeTheLight campaign encourages supports to give $100 or raise $100 in support of the non-profit’s critical awareness…
Read MoreThe Daze Before the Dream
This isn’t your average nap. Living with narcolepsy, my brain demands to go into R.E.M./dream sleep during the day. Pressure builds and I know it’s THAT time for my brain to do its thing. I get up from my cubicle & head out to my car, hoping not to run into anyone I know along…
Read MoreHave You Told Your Members of Congress About Narcolepsy?
I have a confession. I realized recently, “OMG, I haven’t told my Members of Congress that I have narcolepsy!!” While I consider myself a vocal advocate, I haven’t informed my legislators that I CARE about narcolepsy and sleep research and they should too. So, I’m excited to share that I will be going to Capitol Hill…
Read MoreUp/Lifted Podcast Featuring Narcolepsy
I’m honored to be the first female guest on the Up/Lifted Podcast this week! Up/Lifted is a cool new podcast hosted by Arin Gragossian about “personal history, pivotal moments, & honest stories. And sometimes lifting massive amounts of weight.” On this show, Arin and I did NOT lift weights, but talked living with invisible chronic health conditions, narcolepsy, Project…
Read MoreWatch Now: Narcolepsy Keynote Presentation with Julie Flygare
I’m so excited to share my Health:Further keynote presentation video. I delivered this speech to over 1,000 healthcare professionals in Nashville, TN last year. My speeches are rarely online – so be sure to check this out! Watch video: I shared here how mad nervous I was for this speech, but I managed to pull it…
Read MoreCNN Article on My Marathon with Narcolepsy
I’m thrilled to share CNN Health’s feature article Runner: Having narcolepsy is harder than a marathon. This Sleep Awareness Week, please share with your friends and family to raise critical narcolepsy awareness. Working with CNN on this piece was particularly meaningful. I first spoke with the reporter, Maria, in January two months before the race after she’d read…
Read MoreSpeaking about Narcolepsy at Sleep Symposium
On Saturday, March 25, I was honored to give my narcolepsy presentation at Hoag Health’s Sleep Symposium in Irvine, CA. Because I work full-time with a long commute, I got home fairly late on Friday night and started counting backward from when I was supposed to be in Irvine on Saturday at 9:00 a.m. The…
Read MoreHear My Narcolepsy Presentation this Saturday in Irvine, CA
I’m so excited to give my narcolepsy presentation this Saturday, March 25, 2017, at Hoag Neurosciences Institute’s Sleep Symposium in Irvine, CA. The event is FREE and open to the public, register here to save your spot! The event kicks of at 9:00 a.m. in the Hoag Hospital Irvine Auditorium. I speak from 10:45 – 11:30 a.m. and I’ll be…
Read MoreLifting Weights and Each Others’ Spirits While Living with Narcolepsy and Cataplexy
One of the best parts of the Griffith Park Trial Marathon took place about 10 days BEFORE the race. Arriving home from work one night around 8:00 p.m., I was totally drained and wanted to call it a night, but I had to go running. Ugh. I’d run over 270 miles in four months, and only had…
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