Narcolepsy Finding Retracted but Autoimmune Theory and Epidemiological Association to Influenza/H1N1 Vaccine Remain Strong

Recently, Science reported that Science Translational Medicine (STM), retracted an important study in their December 18, 2013 journal by Dr. Emmanuel Mignot of Stanford that explained the first steps in our understanding of narcolepsy as an autoimmune disorder. In his study, Dr. Mignot had found that T cells were primed to attack hypocretin. Hypocretin are the brain…

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Harvard Medical School’s New Narcolepsy Website

I’m so thrilled to share Harvard Medical School’s new Narcolepsy Website – a fantastic user-friendly resource for patients and supporters alike. There are videos, PDFs and basic information about narcolepsy symptoms, diagnosis and treatment along with suggestions for living well with narcolepsy – including tips for daily life, school, work and safety.  I had the…

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Narcolepsy is an Autoimmune Disorder

IMPORTANT UPDATE: Narcolepsy Finding Retracted but Autoimmune Theory and Epidemiological Association to Influenza/H1N1 Vaccine Remain Strong A recent study confirms that narcolepsy is an autoimmune disorder. Dr. Elizabeth Mellins and Dr. Emmanuel Mignot of Stanford University’s Center for Narcolepsy have discovered a specific group of  “CD4+ T Cells” that target hypocretin and are only found…

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Julie Flygare Featured on BBC Radio Cambridgeshire

This Sunday, Sept. 29, 2013 at 6:00 p.m. (BST), I will be speaking about narcolepsy on BBC Radio Cambridgeshire’s program, The Naked Scientists.  This show, “WAKE UP – The Science of Sleep,” is a fascinating discussion about sleep!  LISTEN NOW: http://www.thenakedscientists.com/HTML/content/interviews/interview/1000425/

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Random Remmie Explains Narcolepsy & Sleep Cycle

“Narcolepsy explained so simply a caveman could understand it.”   You may remember Random Remmie from this previous post, but recently she’s became a movie star, featured in two amazing educaitonal videos. The purpose of these videos is to explain narcolepsy to classmates of children with narcolepsy so they can better understand. Please take a…

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Julie Flygare Publishes Huff Post Narcolepsy Article

Check out my Huff Post article, “Stanford’s Research Provides Hope for Patients With Narcolepsy.”  This is a dream come true for me! Arianna Huffington’s commitment to sleep is a huge inspiration to me. Thank you to the Stanford Sleep Blog for sharing my story. 

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Hello from SLEEP 2013!

This week, I attended and spoke at the APSS SLEEP Meeting, a.k.a. “the Superbowl of Sleep.” Thousands of sleep researchers and clinicians from all over the world attended this meeting on June 1-5 in Baltimore, MD. On Wednesday, I participated on a pediatric narcolepsy panel hosted by Dr. Judith Owens with pediatric specialists, other patients…

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Dr. Mignot Discusses Current State of Narcolepsy Research with NIH’s Dr. Twery

Dr. Michael Twery (Director of the National Center on Sleep Disorders Research at NHLBI) recently discussed narcolepsy research with leading expert, Dr. Mignot (of Stanford University). This video provides a great overview of why narcolepsy develops in certain individuals and the innovative treatments on the horizon for this neurological illness!  Thank you Dr. Twery, Dr. Mignot and NHLBI…

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