Narcolepsy
Hypnagogic Hallucinations & Sleep Paralysis: Julie Flygare Narcolepsy Awareness Video 10
I’m thrilled to release my latest video exploring hypnagogic hallucinations and sleep paralysis – two symptoms of narcolepsy. Thanks for watching, come back soon for more. Big thanks to Alex Withrow for giving his time and pro video production skills to make this possible! Watch All on YouTube Watch Video #9: Why I Wrote a…
Read MoreUnderstanding Pediatric Off-Label Drug Use and Insurance Coverage
Among challenges facing people with narcolepsy, securing health insurance to cover expensive medications can be a source of anxiety and fear. My personal experience with health insurance has been a roller-coaster but ultimately, I am thankful to have decent coverage now (knock on wood). However, I’ve heard multiple stories recently (in news articles, at conferences and…
Read MoreMeet Me at the Lincoln Memorial: National Sleep Walk on March 3 2013
In honor of National Sleep Awareness Week, join me for the 3rd Annual National Sleep Walk in Washington DC! Celebrating sleep health & sleep disorder awareness When: Sunday March 3, 2013 at 10:00 a.m. Where: Lincoln Memorial Reflecting Pool Steps, National Mall, Washington DC (view google map) Who: Free for all who register online. (First 100 registrants receive t-shirt!) What to bring: Walking shoes &…
Read MoreTV Interview with Wide Awake and Dreaming Book Author Julie Flygare
On Wednesday, Jan. 23, 2013 at 9 p.m., my first television interview about my book will air on Montgomery Channel 21! Here’s the program video: I’m thrilled to be a guest on the award-winning Forward Motion program with Karen Allen, a dynamic host and a kind positively-spirited woman. During the filming last week, I felt calm…
Read MoreBook Event with Washington DC Narcolepsy Community
This Saturday, Jan. 19, 2013, from 12:30 – 3:00 p.m., my book will be featured at the Narcolepsy & Hypersomnia Support Group of the Greater Washington DC Area. The meeting is open to all people with narcolepsy or hypersomnia and their supporters. I will be selling and signing books. We can discuss topics from my book…
Read MoreBook Club Guide for Wide Awake and Dreaming: A Memoir of Narcolepsy
DISCUSSION QUESTIONS: Note: These questions aim to encourage discussion; there are no right/wrong answers. Before reading this book, what did you think of narcolepsy? Did this book change your perception? When Julie finally brings up her sleepiness with a primary care doctor, Dr. Andrews, the doctor says everyone gets sleepy. Julie has a gut feeling…
Read MoreAn Unforgettable Day: Celebrating My Book Launch
On January 5, 2013, over 40 people came together in Great Falls, Virgina to celebrate my book release. It was a day I will cherish forever. Old friends and new readers alike gathered at my dear friend Gail’s home. I gave a few remarks and read two favorite passages. Thank you, Gail for hosting such…
Read MoreUnsupportive Friends and Family Members
We ALL have them. So what do we do about them? My advice is two-fold: 1. You can invite your narcolepsy non-supporter to a sleep doctor’s appointment, local support group, or Narcolepsy Network Conference. You can also suggest my videos or my book (shameless plug 😉 )! Ultimately, you may not be able to get through to…
Read MoreSleep’s Choice Published in Five Languages
My essay, Sleep’s Choice about excessive daytime sleepiness of narcolepsy is now published in FIVE languages: English, French, German, Spanish and Italian – on RareConnect.org! As I work towards raising awareness globally, this is a very proud day. Thank you to RareConnect and Robert Pleticha for making this possible! RareConnect is a partnership of EURORDIS and NORD – where rare…
Read MoreWide Awake and Dreaming Book Video Introduction with Author Julie Flygare
I’m thrilled to release this video, introducing my memoir, Wide Awake and Dreaming: Check back soon for more videos. Thank you Alex Withrow for your expert video production!
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