Sleep’s Choice Published in Five Languages
My essay, Sleep’s Choice about excessive daytime sleepiness of narcolepsy is now published in FIVE languages: English, French, German, Spanish and Italian – on RareConnect.org!
As I work towards raising awareness globally, this is a very proud day. Thank you to RareConnect and Robert Pleticha for making this possible!
RareConnect is a partnership of EURORDIS and NORD – where rare disease patients and their caregivers share their stories, discuss common issues, find information vetted by patient organisations, and post or learn about new events and articles related to their disease.
The site is published in and translated by humans among five languages: English, French, German, Italian and Spanish. Each disease-specific community is a secure environment, moderated by trusted patient representatives, where patients can connect, share their experiences, and learn about their disease. Visit: www.rareconnect.org.
Sleep’s Choice was originally published in SleepMatters, A Publication of the National Sleep Foundation here.
Just finished your book. Wonderful job!! Your story helped me realize and better understand some of the experiences I’ve had. I probably had the illness as an adolescent, although a fairly mild case back then – I would have probably been diagnosed as ADD, but back then ADD hadn’t been identified. As I aged the illness progressed slowly, and it wasn’t until I was 49 yrs old that the cataplexy intruded into my life and we discovered the diagnosis. One of my dreams was to earn a college degree, I had been drafted into the Army in my second year at Indiana University. I enrolled at UW-Green Bay and did earn my Bachelor’s degree in May of 2011 – I was 64 years old. Thank you for a great book (I down loaded it onto my computer from Amazon on the 1st of January). Best wishes, Bill
Hi Bill, Thank you so much for reading my book. I’m so glad that it helped you better understand some of your experiences. I’m so sorry to hear that you’ve had narcolepsy for so long undiagnosed. CONGRATULATIONS on earning your Bachelor’s degree in 2011. What an inspiring story! With gratitude and smiles, Julie