Narcolepsy
Ireland’s First Suddenly Sleepy Saturday Narcolepsy Awareness Event: Guest Post by Elaine Butler Armstrong
REM Runner’s Note: Narcolepsy advocate and my dear friend, Elaine Butler Armstrong recently organized Ireland’s First Suddenly Sleepy Saturday Narcolepsy Event! I invited Elaine to share this momentous occassion with us. Elaine’s Guest Blog Post: It’s always a joy to meet up with the members of S.O.U.N.D. (Sufferers Of Unique Narcolepsy Disorder ) and the children…
Read MoreCelebrating Narcolepsy Awareness Day 2013 with Sleep Walk Dallas
On Narcolepsy Awareness Day, Saturday March 9, 2013, I hosted the first Sleep Walk in Dallas, TX! I was traveling to Dallas for the Southern Sleep Society Meeting and planned this event last minute. I’d never been to Dallas and picked the Sleep Walk route by googling around my hotel area. Over the past 3.5 years, I’ve…
Read MorePresenting at the Southern Sleep Society Meeting 2013
On March 10, 2013, I had the honor of giving a presentation at the 35th Annual Meeting of the Southern Sleep Society in Dallas, TX. This is my second year in a row speaking at the SSS Meeting, a large gathering of sleep clinicians, researchers and technicians. The topic of my presentation was “Legal and…
Read MoreA Magical Place & Time: First Sleep Walk in Waikiki – Guest Post by Bridgette Snyder
Photography by Tony Wyatt “Knowing that I have the support of such wonderful people gives me strength I never thought I would have.” -Bridgette Snyder REM Runnner’s Note: Aloha! I had the honor of working with Bridgette to start the first Sleep Walk in Waikiki. It’s my dream to host Sleep Walks all over America. I asked Bridgette to…
Read MoreSign White House Sleep Petition Today!
Please join me in signing the Official White House Sleep Disorder and Sleep Health Awareness Petition! The petition poignantly states:“We petition the Obama administration to recognize the serious impact that sleep disorders have on life, help raise awareness of sleep disorders, promote sleep health for all ages, and to encourage naps over harmful energy drinks for…
Read MoreJulie Flygare Awarded Erica Sara Designs’ March Inspiration of the Month
I’m beyond honored to be Erica Sara Designs’ Inspiration of the Month! A reader, Melissa, nominated me for this award. I couldn’t believe I won! The feature article describes: “Julie’s used a life-altering diagnosis to help increase narcolepsy awareness and education. It’s her hope others with the condition are empowered to stand tall, overcome adversity,…
Read MoreCongressman Foster (D-IL) Submits Congressional Record Statements Supporting Sleep
Please join me in thanking Congressman Bill Foster (D-IL) for his efforts in recognizing National Sleep Awareness Week, March 3rd – 10th, 2013. Congressman Foster submitted statements for the Congressional Record, which called on his fellow colleagues to join him in recognizing National Sleep Awareness Week and to support the Sleep community by raising awareness…
Read MoreFree Book Giveaways & Sleep Walks: Celebrating Suddenly Sleepy Saturday Narcolepsy Awareness Day March 9 2013
Hurray for Suddenly Sleepy Saturday March 9, 2013 – Narcolepsy Awareness Day! I’m celebrating with free books and sleep walks across the USA: Share my book for FREE with friends: FREE E-Book Download Day: March 9, 2013 (12:00am -11:59pm PST). Don’t have a Kindle? No problem. Free Kindle apps for various computers, phones & tablets.…
Read MoreSleep Steps Up: National Sleep Walk Kicks Off National Sleep Awareness Week in Washington, DC
On the same steps where Martin Luther King, Jr. gave his “I Have A Dream” speech, over 125 participants gathered last Sunday (March 3, 2013) to share their dream for America to get a good night’s sleep. The third annual National Sleep Walk brought together doctors, organization leaders, patients and sleep supporters from as far away as…
Read MoreWatch Video: TV Narcolepsy Interview with Julie Flygare on Forward Motion with Karen Allyn
Recently, I was a guest on Forward Motion with Karen Allyn (MCM Channel 21). Re-cap and fun photos here. The video is now online! Watch here or on YouTube. Thank you for checking out my interview! Big thanks to Karen Allyn and the Forward Motion team.
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