Narcolepsy Diagnosis
Join Us! Sleep Walk Tampa Bay
In one month, on Sunday August 31, 2014, we will be walking on the beach to celebrate sleep in St. Pete Beach, FL! Please join myself and local host, Jessica starting at 9:00 a.m. for a 1.5 mile scenic beach walk and sleep spirit contest. Order event t-shirts by August 12, 2014. Join Project Sleep to celebrate…
Read MoreHappy 1st Birthday, NARCOLEPSY: NOT ALONE!
On July 24, 2013, I launched the NARCOLEPSY: NOT ALONE campaign, unsure if anyone would join me. One year later, I can hardly believe the positive energy and enthusiasm supporting the campaign around the world. You’ve touched my heart beyond words, bringing countless smiles to my face and also tears of connection and joy. As…
Read MoreNarcolepsy Book Signing Event in NYC – Recap & Photos
“The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not…
Read MoreNARCOLEPSY: NOT ALONE in UK Newspaper featuring April Scarlett Lee’s story & artwork
“Despite dealing with the nightmares caused by her condition, April Scarlett Lee’s cartoons have gone global as part of Project Sleep!” April-Scarlett Lee’s narcolepsy journey and the NARCOLEPSY: NOT ALONE campaign are featured in the news this week! Read “Tackling Narcolepsy” by Lydia Johnson, Worcester News, July 7, 2014 [PDF]. I’m so proud to call…
Read MoreNarcolepsy – Am I Sick or Healthy?
If sickness and health are two opposite ends of the spectrum, then where do I fit in? The other day, I battled excruciating eye-burning sleepiness that felt like pure torture/hell. That same day, I also ran 3 beautiful miles in the golden California sunshine. Am I the sickest healthy person you know or the healthiest…
Read MoreNarcolepsy Article Accepted for Publication by American Journal of Medicine
I’m on PubMed! I’m thrilled to announce that the American Journal of Medicine accepted my article for publication, Flygare J, Parthasarathy S, Narcolepsy: Let the Patient’s Voice Awaken Us!, The American Journal of Medicine (2014), doi: 10.1016/j.amjmed.2014.05.037. I was honored to collaborate with Dr. Sai Parthasarathy, MD on this article. Dr. Parthasarathy is Associate Professor of Medicine…
Read MoreNarcolepsy on The Doctors Show
On Thursday, May 22, 2014, narcolepsy will be featured on The Doctors Show. Please check for local listings here. As a narcolepsy spokesperson and author of Wide Awake and Dreaming: A Memoir of Narcolepsy, I’m so thrilled that the Doctors Show will highlight narcolepsy on TV. Thank you to my brave and beautiful friend and co-advocate,…
Read MoreNARCOLEPSY: NOT ALONE on NBC News in Chattanooga TN
NARCOLEPSY: NOT ALONE is on the news! I’m thrilled to share that NBC News Channel 3 WRCB in Chattanooga, TN featured the NNA campaign in a terrific segment with my friend and fellow advocate, Valencia Blake. WATCH HERE. The segment beautifully describes the NARCOLEPSY: NOT ALONE campaign as a nationwide effort to reach people with…
Read MoreRead the book with “not much info on anything” and “nothing to be learned by reading” it!
My book got it’s first one-star review on Amazon and I sort of LOVE it. Read below: I won’t use this forum to defend Wide Awake and Dreaming: A Memoir of Narcolepsy or bash this reviewer. Every reader is entitled to his or her opinion. It doesn’t interest me to persuade him/her/you differently. But…
Read MoreMeet the Jack & Julie Narcolepsy Scholarship Award Recipients 2014
The Jack and Julie Narcolepsy Scholarship is delighted to announce that two recipients of the inaugural scholarship 2014 are Kendra Larrabee and Jacob Zeiher. We are thrilled to award both Kendra and Jacob a $1,000 scholarship toward their college education. The Jack & Julie Narcolepsy Scholarship is the first-ever scholarship supporting students with narcolepsy while also…
Read More