Exercise and Narcolepsy
In Retrospect & Call for Submissions
I have a confession to make regarding exercise and narcolepsy. Although I rarely think I’m wrong about much, I must admit I was wrong about something on this blog. Athletics had always been a huge part of my life, yet I stopped exercising altogether when diagnosed with narcolepsy and cataplexy. As you know, I reincorporated…
Read MoreAn Inspirational Walk
Last Sunday morning, much too early for my liking, I got up and dressed in my warmest running pants, a pink sweatshirt, and my Wake Up Narcolepsy cap. Crossing the national mall by 8am, the area seemed eerily deserted, as in later hours of the day, tourists usually flood these pathways by the hundreds.…
Read MoreAfter the Party Is the After-Party
In the after-glow of the marathon, I made my way from the finish line over to Sonsie Restaurant on Newbury Street, where Wake Up Narcolepsy was hosting a post-race celebration for its four marathon runners and their supporters. Although physically drained, I was still “flying high” with awe and excitement that I’d actually done it! …
Read MoreFrom Start To Finish
The first half of the marathon, running through Hopkinton, Ashland, Framingham and Natick can be summed up in one snapshot – me being passed. I wasn’t passed by a few runners, I was passed by everyone. The gazelles flew by first, rubbing elbows with me as they weaved their maze around the slower runners –…
Read MoreIntroduction: From Where I Stand
There are times when I can’t walk from one side of a room to the other without falling to the ground. I have a disorder called narcolepsy with cataplexy, and cataplexy is a rare form of temporary muscle paralysis that can lead to full body collapse. There is no cure for this disorder at this…
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