Excessive Daytime Sleepiness
CNN Article on My Marathon with Narcolepsy
I’m thrilled to share CNN Health’s feature article Runner: Having narcolepsy is harder than a marathon. This Sleep Awareness Week, please share with your friends and family to raise critical narcolepsy awareness. Working with CNN on this piece was particularly meaningful. I first spoke with the reporter, Maria, in January two months before the race after she’d read…
Read MoreSpeaking about Narcolepsy at Sleep Symposium
On Saturday, March 25, I was honored to give my narcolepsy presentation at Hoag Health’s Sleep Symposium in Irvine, CA. Because I work full-time with a long commute, I got home fairly late on Friday night and started counting backward from when I was supposed to be in Irvine on Saturday at 9:00 a.m. The…
Read MoreLifting Weights and Each Others’ Spirits While Living with Narcolepsy and Cataplexy
One of the best parts of the Griffith Park Trial Marathon took place about 10 days BEFORE the race. Arriving home from work one night around 8:00 p.m., I was totally drained and wanted to call it a night, but I had to go running. Ugh. I’d run over 270 miles in four months, and only had…
Read MoreWeekend Plans? Sleep In to Raise Awareness!
After running Griffith Park Trail Marathon last weekend, I couldn’t be any more excited for Sleep In 2017 (#SleepIn2017) this weekend! Please join me by staying in bed for 12-48 hours to raise awareness about sleep health and sleep disorders. Yep, you heard me right… The challenge is to REST and SLEEP. Register here and invite your friends and family to…
Read MoreI did it!! Conquering Griffith Park Trail Marathon with Narcolepsy
On Saturday, March 4, 2017, I took on the Griffith Park Trail Marathon as a person with narcolepsy to raise funds for Project Sleep’s Jack & Julie Narcolepsy Scholarship. As I said here, I was nervous and uncertain. On the morning of the race, I woke up lethargic and stiff, but I showed up. I had…
Read MoreHow to Become a Narcolepsy Advocate? Apply Today for Rising Voices of Narcolepsy – Deadline Approaching
We all have a story to tell. Let’s get busy telling yours! I’m so excited to share the news that Project Sleep is now accepting applications for the Rising Voices of Narcolepsy leadership training program. However, the application deadline is quickly approaching in 9 days on February 24th, 2017 at 5:00pm PST, so please view summer 2017…
Read MoreCourage is Contagious: Mental Health Provider Speaks Up About Narcolepsy
Meet Sarah, a mental health professional in Chicago who was diagnosed with narcolepsy in 2015 after facing years of mysterious symptoms and misdiagnoses. In this informative iBehaviorCoach Radio podcast hosted by Matt Lawson, Sarah debunks myths and raises important awareness about narcolepsy and the invisible nature of sleepiness. I eagerly tuned in to hear about Sarah’s experience…
Read MoreTeaching Class at Stanford Medical School
Recently, I got to teach the Engage & Empower Me class at Stanford Medical School. I shared my story of narcolepsy and founding Project Sleep to make sleep cool, then the students conducted a design-thinking challenge on promoting healthy sleep habits for college students. The students came up with AWESOME project concepts. Also they taught…
Read More“I’ll Never Forget Narcolepsy Now.” -UCLA Medical Student
This fall, I was BUSY spreading narcolepsy awareness to doctors, medical students and researchers across the country. Upon returning from Italy, I started back at my full-time job in pancreatic cancer advocacy first thing the next morning. The following evening, I traveled to UCLA Medical School to give my narcolepsy presentation for first-year medical students…
Read MoreA Message to the Narcolepsy Community in Italy!
REMRunner’s Note: This post is in Italian for the amazing friends I met during my recent trip to Bologna. To read about my trip in English, check out part I and part II. Ciao amici, Grazie per avermi accolto nel vostro paese. E’ stato così meraviglioso incontrarvi e passare la giornata con voi al 20° anniversario dell’AIN (Associazione…
Read More