Things I Love: EatSleepPlay at the Children’s Museum of Manhattan

“EatSleepPlay: Building Health Every Day” is an innovative exhibition at the Children’s Museum of Manhattan with over 70 interactive exhibits. This huge arts installation engages children (and adults) towards making healthy decisions in nutrition, sleep and active play.   As reported by the New York Times:The “Sleep” section illustrates all the functions the body performs during nonwaking…

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My Twisted Fairytale: A Poem by Shelby Stein

I feel like a princess locked in a tower. My Narcolepsy is my dragon guard. My weight loss is the lava moat that makes me cower more. My evil witch is merely my medicine, At first we didn’t see the harm, For it had a magic disguise to seem so beautiful. My poison apple of my…

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Let Her Sleep…

A welcome reminderTo let go,Let sleep wash in,Knowing I will rise again,and take on the world. All in good time. I discovered this image on Pinterest and had to share! Link to print on Etsy. Xoxo, REM Runner

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Ireland’s First Suddenly Sleepy Saturday Narcolepsy Awareness Event: Guest Post by Elaine Butler Armstrong

REM Runner’s Note: Narcolepsy advocate and my dear friend, Elaine Butler Armstrong recently organized Ireland’s First Suddenly Sleepy Saturday Narcolepsy Event! I invited Elaine to share this momentous occassion with us. Elaine’s Guest Blog Post: It’s always a joy to meet up with the members of S.O.U.N.D. (Sufferers Of Unique Narcolepsy Disorder ) and the children…

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Things I Love: PWNY Beads Dreamy Designs

“Passionate people embrace what they love and never let it go. Those who say it cannot be done should not interrupt those of us who are doing it.” -Julie Ann Funk, PWNY Beads Owner, Maker, Designer Chronic illness can be ugly. So when I discovered PWNY Beads jewelry & replacement Medical ID bracelets, I smiled long…

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REM Runner’s Top 13 Inspirational Quotes – #1 Half the Truth

The passage from Kahlil Gibran’s The Prophet continues:  “To measure you by your smallest dead is to reckon the power of the ocean by the frailty of its foam. To judge you by your failures is to cast blame upon the seasons for their inconstancy.”  My weaknesses do NOT erase my strengths. Believing in myself means standing in…

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