Posts Tagged ‘Cataplexy’
Julie Flygare Writes Narcolepsy Patient Perspective Guest Blog Post on PsychologyToday.com
I’m thrilled to share my guest blog post, “Notes on Narcolepsy: Part 3 – From the Patient’s Perspective,” on Psychology Today’s “The Land of Nod” Blog by Dr. Shelby Harris. Dr. Harris is a friend, a clinical psychologist and the Director of the Behavioral Sleep Medicine Program at Montefiore Medical Center. For this post, she asked me to…
Read MoreNice News Segment on Narcolepsy with Cataplexy
This segment features a lovely young woman, Kay Underwood, living with narcolepsy and cataplexy. GMTV accurately and effectively highlighted narcolepsy with cataplexy. Hip hip hurray! This video shows Kay collapsing while laughing – but she is not falling over asleep – she’s falling over with the paralysis of dream sleep while awake. Why is Kay Underwood collapsing when she…
Read MoreNational Geographic Channel Features Narcolepsy with Cataplexy on Taboo: Strange Behavior (Video Preview)
On Sunday, June 24, 2012, 10pm ET, National Geographic Channel will air Taboo: Strange Behavior featuring narcolepsy with cataplexy. Watch a short video preview of National Geographic Channel Taboo: Strange Behavior featuring Narcolepsy here. This preview highlights cataplexy, a symptom of narcolepsy when emotions (humor, annoyance, joy, anger) causes loss of muscle tone without loss of consciousness.…
Read MoreTo Fly: Running Mt Washington Road Race
I started this journey with a broken heart; I felt lost and alone without my Dad. I wanted so badly to re-connect with him on the mountain. While training, I faced fears and trampled over my comfort zone many times. I gained support from people near and far. By race day, my heart was filled with love…
Read MoreREM Runner Attends SLEEP 2012 Conference
I had the honor of attending SLEEP 2012 in Boston, MA last week. This conference brought together sleep doctors and researchers from around the world. I volunteered at Wake Up Narcolepsy’s exhibition hall booth. It was great to see familiar faces and meet many new people. Narcolepsy was very well represented at SLEEP 2012 with…
Read MorePortsmouth Herald Features Julie Flygare’s Quest to Honor Father in Mt Washington Road Race
Today’s Portsmouth Herald features an article about my quest to honor my dad, Tom Flygare by running Mt Washington Road Race on Saturday while living with narcolepsy with cataplexy. Read: “Flygare to run Mt Washington race in honor of her dad,” by Charles McMahon, Portsmouth Herald, June 15, 2012. Please consider supporting my quest here. Packing for my…
Read MoreNBC Nightly News with Brian Williams Features Narcolepsy’s Role in Insomnia Drug Developement
An upcoming insomnia medication, Suvorexant developed from our understanding of narcolepsy. At the SLEEP 2012 Conference today, Merck announced results for additional clinical trials – indicating that the drug made people fall asleep 40 percent faster and sleep 40 percent longer than placebo. I wasn’t able to attend this conference session today. NBC’s Nightly News…
Read MoreBlindsided: Navigating Life’s Construction Zones
With one week until I take on “one of the most grueling road races in the world,” I must admit, I entered this race blindly. My heart said “Yes!” before my body and brain weighed in. I wanted to honor my father on Father’s Day weekend. When I began training, I realized this mountain was a bit…
Read MoreNarcolepsy… What’s that?
When I tell people I have narcolepsy, I generally get the same response: “So you can fall asleep in the middle of a conversation?” For the record, I’ve fallen asleep in a lot of strange places but I’m fairly certain I’ve never fallen asleep in the middle of a conversation. (Correct me if I’m wrong!) However, in all…
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