REM Runner’s Note: Tim created this unique photo for the NARCOLEPSY: NOT ALONE campaign. Read his amazing description below. Thank you, Tim!
Tim’s Guest Post:
Having narcolepsy can be confusing. Reality as experienced by a narcoleptic may often be distorted. Dream fragments live large in the mind and memories are unreliable. It can sometimes be challenging to hold yourself in the moment and keep a sense of identity. This photograph was an attempt to ‘reflect’ some of this unseen complexity of simply being awake when you have narcolepsy. Whilst the more obvious sleep problems and cataplexy are often described and at least partially understood by the general public, some of the more invisible symptoms can have just as significant effects on daily life.
About the Artist: Tim is a narcoleptic and amateur photographer, living in the wilds of West Wales. He is also a volunteer trustee and director of the charity Narcolepsy UK (www.narcolepsy.org.uk).
What does it mean to you to participate in NARCOLEPSY: NOT ALONE? Share your campaign experience in a guest blog post – email firstname.lastname@example.org!