Jumping Into a New Chapter of My Journey

Hi friends! I’m so beyond excited to share that as of February 12, 2018, I made a huge career change and took on a new role as President & Chief Executive Officer (CEO) of Project Sleep! Read the full announcement here. Wait, what’s the difference?   Some people have said they thought I was already serving in this…

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The Doctors Show Features My Story with Narcolepsy

Tune in to the Doctors TV Show this Monday Feb. 9, I’ll be sharing my journey with narcolepsy – including sleepiness, cataplexy, sleep paralysis and hypnagogic hallucinations . See full information here. Watch TV interview online:   Crafting an honest and accurate portrayal of narcolepsy with the Doctors TV Show was a lot of fun.  I was blown away…

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Another Restless Night: Poem by Denna Noah

Darkness fallsSleep eventually tooSandman fails to allow deep slumberLike he allows for you My body is exhausted And it cannot keep onIt shuts itself downUnfortunately not for long In your eyes I appear to restBut here, where I amIt’s such a mess Shhhhh I hear him comingCircling through my house Walking room to roomI remain quiet as…

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Reflections on Narcolepsy: Guest Post by Tim Josiah Kavanagh

REM Runner’s Note: Tim created this unique photo for the NARCOLEPSY: NOT ALONE campaign. Read his amazing description below. Thank you, Tim! Tim’s Guest Post: Having narcolepsy can be confusing. Reality as experienced by a narcoleptic may often be distorted. Dream fragments live large in the mind and memories are unreliable. It can sometimes be…

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Perception TV Show Features Narcolepsy

TNT’s crime-drama TV series, Perception, featured narcolepsy on a recent episode, “Alienation” (Season 2, Episode 2).   Watch narcolepsy clip here: One character describes aliens coming into his bedroom shortly after he’s gone to sleep. This terrifying description caputures sleep paralysis (the inability to move) AND hypnagogic hallucination (seeing the aliens in his bedroom as if…

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Things I Love: PWNY Beads Dreamy Designs

“Passionate people embrace what they love and never let it go. Those who say it cannot be done should not interrupt those of us who are doing it.” -Julie Ann Funk, PWNY Beads Owner, Maker, Designer Chronic illness can be ugly. So when I discovered PWNY Beads jewelry & replacement Medical ID bracelets, I smiled long…

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REM Runner’s Top 13 Inspirational Quotes – #4 Dangerous Dreaming

When pursuing your dreams – ignore all nay-sayers & dream-squashers. Careful, our biggest critic lives in our own heads. Don’t listen. Believe that there is a force in you, built of everything “good” and “bad” in you, that is just getting started. Believe that if you keep putting one foot in front of the other, you will…

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Discovery Channel Narcolepsy Video

Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story.  Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…

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