Filming Narcolepsy TV Show at Montefiore in NYC

by julie on July 11, 2013

This week, I had the honor of traveling to New York City for the filming of a PBS narcolepsy documentary. My interview took place at Montefiore Medical Center’s Sleep-Wake Disorders Center, a nationally-renowned narcolepsy center located in the Bronx, NY. 

Tuesday morning, I traveled to Montefiore to meet the producer and film crew of Healthy Body Health Mind, public television’s most carried health series. First, the producer interviewed me about living with narcolepsy. Then,the fun began! I got geared up for a “sleep study” for the cameras. The sleep technician placed electroids on my face. Aw, the glamorous life of a naroclepsy advocate!

Working with the folks from Montefiore Medical Center and Healthy Body Healthy Mind  was a great experience. Only in NYC for less than 24 hours, I enjoyed a few slices of pizza and walked around in the bright lights. I heart NY!

The program will air on public television stations across the country in late August or early September. I will keep you posted! 

{ 6 comments… read them below or add one }

Peter Mansbach July 11, 2013 at 6:11 pm

The Montefiore Sleep Center is not only a narcolepsy center: they first elucidated Delayed Sleep Phase Syndrome. I was diagnosed with DSPS there, even before the seminal paper appeared.

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julie July 11, 2013 at 10:51 pm

Oh, that’s so cool, Peter. Thanks for sharing. I’m a big fan of Montefiore’s sleep team.

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Alex Withrow July 11, 2013 at 9:53 pm

Congrats on being filmed for the TV show! Can’t wait to see the final program. Love that picture of you, by the way :)

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julie July 11, 2013 at 10:50 pm

Thank you, Alex. It was a very fun experience!

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Donna July 12, 2013 at 2:30 pm

Hi, Julie!
Love all the work you do. I had the extreme pleasure of being filmed the day before when the producers were getting an “average” patient’s perspective. They mentioned they filmed Dr. Thorpy, Director, at Montefiore Medical Center’s, Sleep-Wake Disorder Clinic earlier on Monday before coming down to NJ to listen to me babble. And they mentioned they were filming someone the next day. I asked them, “Do you know Julie Flyglare? She’s an well-known Narcolepsy Advocate and excellent writer with her own book and blog. You should talk to her.” and they then told me, that it was you, they were filming the next day.

Well, let me tell you, I, just an average bear (especially in the mornings), but somehow must be famous by association being wedged between Dr. Thorpy, whom I respect greatly, and yourself, whom inspires me. Had lots of fun myself and hope I make some sort of contribution. Great pic as well. Honored to be included. Sincerely!

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julie July 12, 2013 at 3:28 pm

Hi Donna!
Thank you so much for participating in the narcolepsy program too! The producer was telling me how great you did in your interview so I was feeling a bit more nervous than usual.

Thank YOU for speaking out about your experience so that others can recognize their symptoms and get treatment! I’m just an average bear too, especially in the late evenings. ;-)

Looking forward to seeing the final show!
From one advocate to another,
Julie

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