Support System

Dear Diagnosis Blogathon

by julie on October 6, 2013

Dear Diagnosis Blogathon

If you could go back and speak to yourself on your diagnosis day, what would you say?   “Dear Diagnosis” is a Blogathon inviting all narcolepsy and chronic disease bloggers to write a letter to yourself on your diagnosis day. BLOGATHON PARTICIPANTS: An Unnatural Athlete – “Dear Jill” Norexin – “Dear Meaghan” Guest Post – […]


Narcolepsy UK Conference 2013

Guest post by Narcolepsy UK: Narcolepsy UK held its latest conference in Watford, just outside London, on Saturday, Sept. 14, 2013 and it was a great success. Our speakers were Dr Cathy Hill, a specialist in sleep disorders in children, the Medical Detection Dogs charity, fiction author Sue Moorcroft and her research into creating a […]


Samantha Tom Heather & Ken VA 2

Guest post by Samantha Vandeberg: “Family” is a rather confused and distorted idea for me. During my adolescence, I became the child forgotten and learned that blood family didn’t necessarily equal love and support. My grandmother had raised me with endless love and beauty. She died when I was 13 and there was not a […]


Racheal Missouri

REM Runner’s Note: “What does the NARCOLEPSY: NOT ALONE campaign mean to you?” I’m inviting participants to write guest posts about their campaign experience. Thank you, Racheal for sharing your story! Guest Post by Racheal LeBrun:  For me, at age 29, narcolepsy has been a very tough journey of struggling to live my life during […]



by julie on August 3, 2013

narcolepsy not alone 10 days update

Ten days ago, I launched the NARCOLEPSY: NOT ALONE campaign with excitement and nerves. Would people join me? Today, the campaign has 130 photos from 31 states and 14 countries (VIEW GALLERY & MAP)! Highlights: Countries include: Australia, Canada, Columbia, Ireland, Japan, Kenya, The Netherlands, New Zealand, South Africa, South Korea, Spain, United Kingdom, United States, and Wales. One […]


michelle MA 7

REM Runner’s Note: I met Michelle at my first NN Conference five years ago and we’ve remained dear friends ever since. In this post, Michelle describes participating in the NARCOLEPSY: NOT ALONE campaign. Michelle’s Guest Post: I was honored to participate in the Narcolepsy: Not Alone campaign. And that is exactly how my family and friends felt […]