Support System

Dear Julie

by julie on November 1, 2013

This is my personal response to my “Dear Diagnosis” Blogathon prompt. Read other responses and join us here. ——— Dear Julie, You will be okay. You will be okay. I wish I could reach through time and give you a big hug. I wish I could protect your heart from the pain. It will not go […]


Narcolepsy Network Conference 2013

by julie on October 30, 2013

On Oct. 18 – 20, I attended the Annual Narcolepsy Network Conference in Atlanta, GA, where I led four sessions along with selling and signing books. It was a whirlwind weekend – catching up with old friends and meeting new friends. The conference had a fantastic line-up of narcolepsy researchers and clinicians. These doctors were […]


Dear Diagnosis Blogathon

by julie on October 6, 2013

If you could go back and speak to yourself on your diagnosis day, what would you say?   “Dear Diagnosis” is a Blogathon inviting all narcolepsy and chronic disease bloggers to write a letter to yourself on your diagnosis day. BLOGATHON PARTICIPANTS: An Unnatural Athlete – “Dear Jill” Norexin – “Dear Meaghan” Guest Post – […]


Guest post by Narcolepsy UK: Narcolepsy UK held its latest conference in Watford, just outside London, on Saturday, Sept. 14, 2013 and it was a great success. Our speakers were Dr Cathy Hill, a specialist in sleep disorders in children, the Medical Detection Dogs charity, fiction author Sue Moorcroft and her research into creating a […]


Guest post by Samantha Vandeberg: “Family” is a rather confused and distorted idea for me. During my adolescence, I became the child forgotten and learned that blood family didn’t necessarily equal love and support. My grandmother had raised me with endless love and beauty. She died when I was 13 and there was not a […]


REM Runner’s Note: “What does the NARCOLEPSY: NOT ALONE campaign mean to you?” I’m inviting participants to write guest posts about their campaign experience. Thank you, Racheal for sharing your story! Guest Post by Racheal LeBrun:  For me, at age 29, narcolepsy has been a very tough journey of struggling to live my life during […]



by julie on August 3, 2013

Ten days ago, I launched the NARCOLEPSY: NOT ALONE campaign with excitement and nerves. Would people join me? Today, the campaign has 130 photos from 31 states and 14 countries (VIEW GALLERY & MAP)! Highlights: Countries include: Australia, Canada, Columbia, Ireland, Japan, Kenya, The Netherlands, New Zealand, South Africa, South Korea, Spain, United Kingdom, United States, and Wales. One […]


REM Runner’s Note: I met Michelle at my first NN Conference five years ago and we’ve remained dear friends ever since. In this post, Michelle describes participating in the NARCOLEPSY: NOT ALONE campaign. Michelle’s Guest Post: I was honored to participate in the Narcolepsy: Not Alone campaign. And that is exactly how my family and friends felt […]