Science of Narcolepsy

At SLEEP 2013, I attended many fascinating sessions exploring the frontier of sleep science. I am not a scientist, but as a sleep and narcolepsy advocate, I will provide major takeaways from SLEEP 2013’s scientific program in upcoming blog posts. At the meeting, new data from Finland, France and China further suggested a link between […]


Hello from SLEEP 2013!

by julie on June 8, 2013

This week, I attended and spoke at the APSS SLEEP Meeting, a.k.a. “the Superbowl of Sleep.” Thousands of sleep researchers and clinicians from all over the world attended this meeting on June 1-5 in Baltimore, MD. On Wednesday, I participated on a pediatric narcolepsy panel hosted by Dr. Judith Owens with pediatric specialists, other patients […]


Dr. Michael Twery (Director of the National Center on Sleep Disorders Research at NHLBI) recently discussed narcolepsy research with leading expert, Dr. Mignot (of Stanford University). This video provides a great overview of why narcolepsy develops in certain individuals and the innovative treatments on the horizon for this neurological illness!  Thank you Dr. Twery, Dr. Mignot and NHLBI […]


The 36th meeting of the Sleep Disorder Research Advisory Board (SDRAB) took place on Feb. 25 – 26, 2013 on the National Institutes of Health (NIH) Campus in Bethesda, MD. The current Board is comprised of five sleep researchers and four patient representatives, including yours truly, the REM Runner! Ad-hoc participants include Michael Twery, Ph.D., […]


Discovery Channel Narcolepsy Video

by julie on December 9, 2012

Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story.  Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and […]


This Saturday, December 8, 2012 at 8 a.m. (EST) – Discovery Channel airs Narcolepsy: New Strategies for Diagnosis and Treatment, featuring my story, along with a panel of experts and a second patient perspective. The program will air a second time on Saturday, Dec. 22, 2012 at 8 a.m. (EST).  It was an honor to work […]


Every day, at least once, but usually twice, my head gets heavy, as if a weight sits on my skull, and I know, right then, that sleep is coming. If I don’t put my head down immediately, the heaviness only gets heavier. My joints begin to ache and a wave of nausea comes over me. […]


The View From Dreamworld

by julie on May 4, 2012

Did you know that the boundaries between dreaming and consciousness are broken down in the brains of people with narcolepsy? I experience my night dreams as real as reality. So during the day, I chase down my life dreams. Current dreams I’m chasing: the steepest road race in America and my memoir. Is it selfish […]


Just 15 minutes into the 5 o’clock news today, NBC Washington featured an in-depth report about my experience with narcolepsy and cataplexy. Please share to help raise awareness! Watch here: View more videos at: Description:”Julie Flygare had the world in the palm of her hand. She was in law school, she was an avid […]


What causes narcolepsy? I wasn’t born with narcolepsy but developed it in my late teens to early 20’s. Evidence continues to suggest that influenza A (including H1N1) and other winter airway infections play a significant role in narcolepsy onset. However, the role of H1N1 vaccination is a different story, suggests a recent study led by […]