Science of Narcolepsy

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Dr. Michael Twery (Director of the National Center on Sleep Disorders Research at NHLBI) recently discussed narcolepsy research with leading expert, Dr. Mignot (of Stanford University). This video provides a great overview of why narcolepsy develops in certain individuals and the innovative treatments on the horizon for this neurological illness!  Thank you Dr. Twery, Dr. Mignot and NHLBI […]

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The 36th meeting of the Sleep Disorder Research Advisory Board (SDRAB) took place on Feb. 25 – 26, 2013 on the National Institutes of Health (NIH) Campus in Bethesda, MD. The current Board is comprised of five sleep researchers and four patient representatives, including yours truly, the REM Runner! Ad-hoc participants include Michael Twery, Ph.D., […]

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Discovery Channel Narcolepsy Video

by julie on December 9, 2012

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Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story.  Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and […]

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This Saturday, December 8, 2012 at 8 a.m. (EST) – Discovery Channel airs Narcolepsy: New Strategies for Diagnosis and Treatment, featuring my story, along with a panel of experts and a second patient perspective. The program will air a second time on Saturday, Dec. 22, 2012 at 8 a.m. (EST).  It was an honor to work […]

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Every day, at least once, but usually twice, my head gets heavy, as if a weight sits on my skull, and I know, right then, that sleep is coming. If I don’t put my head down immediately, the heaviness only gets heavier. My joints begin to ache and a wave of nausea comes over me. […]

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The View From Dreamworld

by julie on May 4, 2012

Did you know that the boundaries between dreaming and consciousness are broken down in the brains of people with narcolepsy? I experience my night dreams as real as reality. So during the day, I chase down my life dreams. Current dreams I’m chasing: the steepest road race in America and my memoir. Is it selfish […]

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NBC Narcolepsy Flygare

Just 15 minutes into the 5 o’clock news today, NBC Washington featured an in-depth report about my experience with narcolepsy and cataplexy. Please share to help raise awareness! Watch here: View more videos at: http://nbcwashington.com. Description:”Julie Flygare had the world in the palm of her hand. She was in law school, she was an avid […]

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What causes narcolepsy? I wasn’t born with narcolepsy but developed it in my late teens to early 20’s. Evidence continues to suggest that influenza A (including H1N1) and other winter airway infections play a significant role in narcolepsy onset. However, the role of H1N1 vaccination is a different story, suggests a recent study led by […]

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I’ve learned to trust my “gut feeling” in sticky situations. Yet how is it that my body’s natural response is smarter than my well-educated rational mind?! This month, O: The Oprah Magazine answers this question in a fascinating article, “The Science of Intuition: An eye-opening guide to your sixth sense,” by Annie Murphy Paul (August […]

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What do people with insomnia and people with narcolepsy have in common? Trick question! I don’t know, but we may be coming closer to an answer. In the late 90’s, narcolepsy researchers made a significant breakthrough in successfully identifying the brain cells, called hypocretin (or orexin), that go missing in those that develop narcolepsy.  These […]

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