Dr. Mignot

REM Runner’s Note: Narcolepsy advocate and my dear friend, Elaine Butler Armstrong recently organized Ireland’s First Suddenly Sleepy Saturday Narcolepsy Event! I invited Elaine to share this momentous occassion with us. Elaine’s Guest Blog Post: It’s always a joy to meet up with the members of S.O.U.N.D. (Sufferers Of Unique Narcolepsy Disorder ) and the children […]

{ 9 comments }

So excited to share my very first book review here! Written by the amazing blogger Amanda of “Small Steps: A teenager’s look at living with multiple chronic illnesses including an undiagnosed condition, narcolepsy, cataplexy and gluten and lactose intolerance.”  Thank you so much, Amanda! What the experts are saying about my book: “Julie’s memoir describes with eloquence […]

{ 4 comments }

Macy Gray Raises Narcolepsy Awareness

by julie on November 13, 2012

“Narcolepsy can be really damaging to your quality of life.” – Macy Gray Macy Gray recently spoke about narcolepsy in an in-depth interview with HuffPost Live. Macy stated that a close family member has struggled with narcolepsy for many years. “It’s very debilitating,” explained Macy Gray, a world-famous singer-songwriter, record producer and actress. Our narcolepsy wizard, […]

{ 0 comments }