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When I hit “publish” on this post, I will be sharing something I’ve been scared to tell you. So here it goes… On March 4th, I will take on the greatest athletic challenge of my life – the Griffith Park Trail Marathon. Will you support me? This beastly race is 26.2 miles while also climbing 3,669 feet […]

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2016: A Year in Narcolepsy Advocacy with Julie Flygare

From the White House to Italy and Ireland – 2016 was an AMAZING year of narcolepsy advocacy and Project Sleep programming! This video shares this whirlwind of a year.  It was a joy and honor to give 12 presentations to doctors, researchers, med students, patients and families across the country and around the world this […]

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Teaching Class at Stanford Medical School

by julie on December 27, 2016

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Recently, I got to teach the Engage & Empower Me class at Stanford Medical School. I shared my story of narcolepsy and founding Project Sleep to make sleep cool, then the students conducted a design-thinking challenge on promoting healthy sleep habits for college students. The students came up with AWESOME project concepts. Also they taught […]

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Re-Discovering Halloween with Narcolepsy

by julie on December 5, 2016

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Nine Halloweens ago, I felt like a “monster” – lacking the energy and health to play the role of the fun fabulous party host I wanted to be. At the time, I was a few weeks into my narcolepsy diagnosis and struggling terribly to adjust. Check out chapter 11 of my memoir, Wide Awake and Dreaming: […]

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This fall, I was BUSY spreading narcolepsy awareness to doctors, medical students and researchers across the country. Upon returning from Italy, I started back at my full-time job in pancreatic cancer advocacy first thing the next morning. The following evening, I traveled to UCLA Medical School to give my narcolepsy presentation for first-year medical students […]

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A Message to the Narcolepsy Community in Italy!

by julie on November 14, 2016

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REMRunner’s Note: This post is in Italian for the amazing friends I met during my recent trip to Bologna. To read about my trip in English, check out part I and part II.  Ciao amici, Grazie per avermi accolto nel vostro paese. E’ stato così meraviglioso incontrarvi e passare la giornata con voi al 20° anniversario dell’AIN (Associazione […]

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Raising Narcolepsy Awareness in Italy!

by julie on November 13, 2016

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On Saturday Sept. 24, 2016, I stood outside the fancy lecture hall at the University of Bologna in Italy, fidgeting with nerves. I picked up my headset for the “live translation” system that would be my lifeline for the day. Traveling to Italy to speak at the 20th Anniversary of AIN (Associazione Italiana Narcolettici e […]

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I felt a scratch in my throat at Stanford’s Medicine X conference.  Flying to Italy, pressure spread across my forehead. Waking early the next morning in Bologna, a breeze swirled in through my open hotel window. I smiled and then I coughed… And coughed… And coughed. It was official. I was sick. In Italy.   How could […]

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The Magic of MedX 2016

by julie on October 20, 2016

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On my birthday, I traveled to San Francisco to participate in my favorite conference, Stanford Medicine X 2016! On Thursday, Sept 15, I participated in two interesting workshops and then the full conference took place Friday Sept 16 – Sunday Sept 18. Although this was only my second year attending MedX, it felt like a […]

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Narcolepsy Advocate in Neurology Now Magazine

by julie on October 12, 2016

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Hot off the presses! I’m proud to be featured in Neurology Now’s article, Self Diagnose Successfully, on becoming an empowered and informed patient. I love Neurology Now magazine but narcolepsy isn’t included much, so I am thrilled to help raise some narcolepsy awareness with this neurology audience. Also, it’s super cool that my MedX friend, Matthew Might is […]

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