Science is COOL! I stumbled across these fun videos by The Infographics Show. I especially loved the one about the Brain. “Brains have a similar texture to tofu.” Yum… Enjoy!
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As a person with narcolepsy, a sleep disorder or chronic illness, what’s your take on exercise? Too tired? Crucial to your health? Improve your symptoms? My latest video explores my experience as an athlete with narcolepsy and offers tips for successfully incorporating exercise into your life. Come back for more videos soon! Thank you [...]
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REM Runner’s Intro: Meet Cherae – a teen mother, college graduate, medical assistant, 20 year old woman with narcolepsy. Young people with narcolepsy may worry about having children, wondering if they’ll have the energy to care for a child. Fair enough. Yet I’ve met many inspiring parents living with narcolepsy. I’m thrilled to share one amazing story [...]
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I’m excited to share, ”Narcolepsy Patients Hope FDA Attention Will Spur Drug Research, Shed Misperceptions” by Brenda Sandburg, The Pink Sheet, May 13, 2013. [View/Download PDF] This great article describes narcolepsy’s inclusion in FDA’s Patient Focused Drug Development Iniative. Thank you Ms. Sandburg and the Pink Sheet for featuring narcolepsy in your publication! More Info:Narcolepsy Selected for [...]
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My latest video, “Debunking the Narcolepsy Myth” challenges perceptions of people with narcolepsy falling asleep in the middle of a conversation or while standing and educates about real symptoms. Thanks for watching! Thank you to Alex Withrow for his expert video production. Watch full video series Watch Video #15: Narcolepsy Chosen for FDA InitiativeWatch Video #14: [...]
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Download the award-winning Wide Awake and Dreaming: A Memoir of Narcolepsy e-Book for FREE on May 11-12, 2013. My book recently won first place in the San Francisco Book Festival Biography/Autobiography competition. Let’s celebrate with free books! When: Saturday May 11 & Sunday May 12, 2013 (12:00am -11:59pm PST)Where: Amazon.com – download free e-book here.Don’t have a Kindle? No [...]
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I’m thrilled to release my 15th narcolepsy awareness video providing an update on narcolepsy’s placement in FDA’s Patient Focused Drug Development Initiative (PDFFI). Thank you for checking out my video! Big thanks to Alex Withrow for his expert video production. Watch full video series Watch Video #14: Tips for Students with NarcolepsyWatch Video #13: [...]
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Wide Awake and Dreaming: A Memoir of Narcolepsy won first prize in the 2013 San Francisco Book Festival Biography/Autobiography competition. My heart raced with joy receiving the news today! Congratulations to Runner-Up (and New York Times Bestseller), Brain on Fire by Susannah Cahalan. I can’t wait to read Ms. Cahalan’s book. Winners will be honored on May 18, [...]
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On Friday afternoon, I had the pleasure of being on the Dr. Don Show to talk about Wide Awake and Dreaming: A Memoir of Narcolepsy. Listen online here. Friday’s show aired live on two Arizona radio stations (KAAA 1230 AM and KZZZ 1490 AM). It was so much fun to discuss my book with Dr. [...]
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Returning to yoga yesterday was like a homecoming celebration. Last fall, I stopped practicing yoga due to a back injury. My doctor had recommended I take time off from exercising and unfortunately, I took his advice. In truth, his advice was convenient because I wasn’t feeling motivated at the time. Time passed. Too much time. [...]
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