Help Unite Narcolepsy Hit 1,000 Survey Responses!

unite narcolepsy survey 1000 goalIn less than two weeks, Unite Narcolepsy has collected 961 survey responses. Please help us reach 1,000 by starting survey here – people with narcolpesy/IH and thier loved ones around the world are invited to participate! 

narcolepsy is here and it matters

To be honest, I can’t believe we are so close to 1,000. Setting this goal, I thought maybe we’d reach it by Sept. 24th. Maaaaaybe. Yet, our community has shown it’s incredible strength, coming together to inform FDA about the REAL narcolepsy – the serious illness that doesn’t fit neatly into a box or on a label.

Our symptoms are diverse, our challenges are incredible, but our collective spirit is strong. Reaching 1,000 survey responses says it loud and clear: Narcolepsy is here, and it matters!

I am honored to be a part of this community. Thank you for taking the survey, participating in the webinars and spreading the word via Facebook and Twitter. Thank you for helping to build a brighter future for narcolepsy.

As a special treat, please check out these very cool graphics created as the survey data comes in:

narcolepsy important life activities

word cloud narcolepsy survey unite narcolepsy


  1. Robert Sloane on September 9, 2013 at 3:59 am

    Thank you for the awareness of your site. We have read the book by you and afew by some others and they all have deep bits of help

    • julie on September 9, 2013 at 2:28 pm

      Thank you, Robert for your support and for reading my book. Much appreciated!

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