In less than two weeks, Unite Narcolepsy has collected 961 survey responses. Please help us reach 1,000 by starting survey here – people with narcolpesy/IH and thier loved ones around the world are invited to participate!
To be honest, I can’t believe we are so close to 1,000. Setting this goal, I thought maybe we’d reach it by Sept. 24th. Maaaaaybe. Yet, our community has shown it’s incredible strength, coming together to inform FDA about the REAL narcolepsy – the serious illness that doesn’t fit neatly into a box or on a label.
Our symptoms are diverse, our challenges are incredible, but our collective spirit is strong. Reaching 1,000 survey responses says it loud and clear: Narcolepsy is here, and it matters!
I am honored to be a part of this community. Thank you for taking the survey, participating in the webinars and spreading the word via Facebook and Twitter. Thank you for helping to build a brighter future for narcolepsy.
As a special treat, please check out these very cool graphics created as the survey data comes in: