Posts Tagged ‘Narcolepsy’
“What is it like to have Narcolepsy?” Communication Tips
Narcolepsy is a neurological disorder of the sleep/wake cycle affecting 1 in every 2,000 people. As a person with narcolepsy, it can be overwhelming to explain the symptoms and affects on life. Typical Questions about Narcolepsy and Simple Answers: Provided by Julie Flygare’s Narcolepsy Mobile App – FREE download today! Q: What is narcolepsy?A: Narcolepsy is a neurological…
Read MoreUnveiling New NARCOLEPSY: NOT ALONE Sleep Fairy T-shirt!
The NARCOLEPSY: NOT ALONE campaign is thrilled to unveil this beautiful new design by April-Scarlett Lee. Show your campaign pride while supporting a great cause. Order today: www.booster.com/NarcolepsyNotAlone Upon seeing April-Scarlett’s artistic contributions to the NARCOLEPSY: NOT ALONE campaign, I asked her if she would team up with me to create an official campaign design. She…
Read MoreSleep Walk Jacksonville Shines Light on Sleep Health & Sleep Disorders – Guest Post by Dietra Mohrman
Over 40 people gathered to raise awareness about sleep health and sleep disorders in sunny Jacksonville, FL on March 8, 2014! Sleep Walkers and canine friends in tow, gathered at Bull Park in Atlantic Beach, FL. They registered and collected event t-shirts, wristbands, buttons and festive goodies. Attendees shared their amazing sleep spirit posters. As the local organizer and “Sleep Fairy” for…
Read MoreNarcolepsy 504 Plans for High School Students – Tips for Parents by Diana Brooks
REM Runner’s Note: Diana is the mother of Danielle Brooks – an amazing, artistic and athletic young woman with narcolepsy who created www.succeedingwithnarcolepsy.com. In this guest post, Diana offers insightful tips for navigating the school accommodations process and helping your student with narcolepsy succeed. Please note: If you’re preparing a 504 plan, you may also find my…
Read MoreNARCOLEPSY: NOT ALONE Hits 1,000!
Today, the NARCOLEPSY: NOT ALONE campaign surpassed 1,000 photos. This stunning photo series highlights the SUPERSTARS of narcolepsy and their supporters in all 50 U.S. States and 37 countries around the world, proving narcolepsy is REAL and we are NOT ALONE! This campaign is changing lives. “Clayton didn’t want anyone knowing he had narcolepsy,” described his mother, Bethany.…
Read More10 Things You Didn’t Know About Narcolepsy
In honor of National Sleep Awareness Week, the top 10 things you didn’t know about narcolepsy: 10. It’s not like the moviesRat Race, Deuce Bigalow: Male Gigolo and Moulin Rouge feature comical characters with narcolepsy. Falling asleep mid-sentence may happen in real-life, but it’s not the typical everyday experience. Narcolepsy is more than sleepiness, involving other serious…
Read MoreBack by Popular Demand – NARCOLEPSY: NOT ALONE t-shirts!
For 9 more days, NARCOLEPSY: NOT ALONE t-shirts are back on sale. T-shirts will arrive to you by Suddenly Sleepy Saturday, March 8, 2014, so we can wear them with pride on National Narcolepsy Day! International orders, please contact me directly at REMRunner01@gmail.com and I will help you fulfill the order myself. Thank you so much…
Read MoreHarvard Medical School’s New Narcolepsy Website
I’m so thrilled to share Harvard Medical School’s new Narcolepsy Website – a fantastic user-friendly resource for patients and supporters alike. There are videos, PDFs and basic information about narcolepsy symptoms, diagnosis and treatment along with suggestions for living well with narcolepsy – including tips for daily life, school, work and safety. I had the…
Read MoreRaising Narcolepsy Awareness at UCLA Medical School
Last Friday, Jan. 31, I shared my inspirational narcolepsy story at UCLA Medical School. In one hour, we laughed, cried and changed perceptions about narcolepsy in future doctors. The medical students had recently studied narcolepsy in their curriculum – briefly learning the symptoms and watching a few YouTube videos. I was honored to add my patient…
Read MoreNarcolepsy Lunch Break Webinar
Join me this Wednesday, Jan. 15 at 1:30 p.m. ET for a very special free online event – I will be hosting a Lunch Break Educational Webinar with the American Sleep and Breathing Academy. Register here. When: Wednesday, January 15, 2014 from 1:30 p.m. to 2:30 p.m. ET Debunking the Narcolepsy MythA Presentation by: Julie Flygare, JD…
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