2012: Year in Review

By julie | December 27, 2012 |

2012 was an exciting year – I realized some big dreams including:1. Publishing my memoir!2. Giving 12 narcolepsy presentations across the country – from California to Cleveland; from Florida to Boston.3. Launching my video series.4. Running Mt Washington Road Race in honor of my father & raising $3,000 for narcolepsy research.5.  Organizing the FDA initiative for narcolepsy.6. Sharing my story…

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Free E-Book Happy Holidays Promotion

By julie | December 23, 2012 |

On Christmas Day, Dec. 25, 2012, the Kindle edition of Wide Awake and Dreaming: A Memoir of Narcolepsy will be FREE to read for 24 hours.  Don’t have a Kindle? Download a FREE Kindle App here to read on your computer, smartphone or tablet (including iPad, iPhone, Mac, Windows 8 PC or tablet, Android phone or…

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Praise for “Wide Awake and Dreaming: A Memoir of Narcolepsy”

By julie | December 13, 2012 |

So excited to share my very first book review here! Written by the amazing blogger Amanda of “Small Steps: A teenager’s look at living with multiple chronic illnesses including an undiagnosed condition, narcolepsy, cataplexy and gluten and lactose intolerance.”  Thank you so much, Amanda! What the experts are saying about my book: “Julie’s memoir describes with eloquence…

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Discovery Channel Narcolepsy Video

By julie | December 9, 2012 |

Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story.  Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…

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Wide Awake and Dreaming: A Memoir of Narcolepsy Hits Shelves

By julie | December 7, 2012 |

Mark your calendars! Wide Awake and Dreaming: A Memoir of Narcolepsy will be published and for sale on Saturday, December 15, 2012.  Where to Purchase:The book will be for sale securely through my website and on Amazon.com (along with Amazon.co.uk, Amazon.de, Amazon.fr, Amazon.it, and Amazon.es). Wider distribution to follow! E-Book: Also on December 15, 2012, the e-book…

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Narcolepsy Awareness Video 5: Communicating about Cataplexy

By julie | December 7, 2012 |

Here’s my latest awareness video offering tips on communicating about cataplexy. Make sure to view in 1080p HD. Watch on YouTube. Enjoy! Thank you to Alex Withrow for his expert video production! Thanks for watching and check back soon for more videos. Watch AllWatch Video #4: What is Cataplexy?Watch Video #3: Communicating Invisible SymptomsWatch Video…

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Narcolepsy on Discovery Channel Featuring Julie Flygare

By julie | December 4, 2012 |

This Saturday, December 8, 2012 at 8 a.m. (EST) – Discovery Channel airs Narcolepsy: New Strategies for Diagnosis and Treatment, featuring my story, along with a panel of experts and a second patient perspective. The program will air a second time on Saturday, Dec. 22, 2012 at 8 a.m. (EST).  It was an honor to work…

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A Note of Thanks & FDA Update

By julie | November 22, 2012 |

This Thanksgiving, I’m grateful for your support.  FDA Update:Last month, I launched the campaign for narcolepsy’s inclusion in the FDA Patient Focused Drug Development Initiative, but I could not do this alone. I’m thrilled to report that we came together as a unified voice in support of narcolepsy. By my unofficial count, a few HUNDRED…

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