REM Runner’s Note: I have enjoyed watching the “People with Narcolepsy Pen Pal” program take off. This is a beautiful positively-spirited group and I’m thrilled to feature this guest post.
Carrie-Ann’s Guest Blot Post:
I would just like to thank Julie Flygare for the opportunity to share this group among her fans, followers and friends! I have created a “People With Narcolepsy Pen Pals” group. I just wanted to clarify this group was made for people who have Narcolepsy, but it is not limited to just that. It also welcomes those with loved ones, (can be friends, spouses or family), who suffer from Narcolepsy and would like to pen pal with people all over the world or in their own communities. They can correspond about Narcolepsy, their struggles or accomplishments, but it does not have to be related about their condition.
Some who do not have Narcolepsy join this group in hopes of learning more, or corresponding with others who do, and the spouses or families of those who have Narcolepsy that have or will join the group can ask for help or advice, or even a better understanding of their loved ones condition. You can decide whether you wish to correspond through Facebook private message, Email or “Snail Mail”… This group was designed to have a more one-on-one personal conversation and connection, and to help others spread awareness and to help others who struggle with their condition, or loved ones who do.
We have had such great success for the Pen Pal Group, and have almost 300 users and well over 500 exchanges, and members are located all over the world, and some have even met in person because of the group and have friends forever!
If you are interested in joining please send a request to the group on Facebook called, “People With Narcolepsy Pen Pals”! A link to the group can be found here.
All that I ask is that you please read the following steps and rules when you are accepted upon joining to help give you an idea on how this group works and what you need to do! Be sure to state your preferences and also introduce yourself on the group wall!
- To better explain how the group works please go to the this link.
- To see examples of some introductions they can also be found here.
We are able to pair you with a pen pal if you wish as I am fairly good at matching members for their needs or interests, or you are able to choose your own. When you do please private message them for their postal address, addresses are not allowed to be posted in page for everyone’s safety!!
If you would like more than one, or would only like one at a time, this is up to you! If you wish to stick with the same pen pal, this is also up to you and the other pen paler. We can rotate pen pals, or pull names out of a hat, basically however you wish to be paired or to select your own… Best idea is to, first initially read the introductions and see with whom you would be interested in exchanging letters with.
If you would prefer exchanging with the same sex only, or only within your country, this can be arranged given there is someone within your specifications…
Please be sure to let me know what it is you decide to do, we need to also make sure everyone is included! Be sure to state whether you wish to only exchange pen pals with People With Narcolepsy only, or those with loved ones who suffer from Narcolepsy, or those without Narcolepsy interested in exchanging with those who do…
Please read this group’s rules (about section is too long when included). Thank you!