FDA Narcolepsy Meeting Video – Watch Now! By julie | October 4, 2013 | 3 The Webcast Recordings of FDA’s Narcolepsy Meeting on Sept. 24, 2013 are now available. Watch Here: PART 1 – Opening to Break PART 2 – Break to Closing Get Involved: REM Runner’s Recap and Photos Take the Unite Narcolepsy Survey Submit Comments to the FDA Docket Posted in Advocacy, Blog, Cataplexy, Children with Narcolepsy, FDA Narcolepsy Patient Meeting, Hypnagogic Hallucinations, Living with Narcolepsy, Medication, Narcolepsy, Narcolepsy Awareness, Narcolepsy Blog, Narcolepsy Diagnosis, Narcolepsy Treatment, What Is Narcolepsy?
So, nothing is captured in the video for comments entered into the Discussion box, except for the last two items near the end of part 1?
Hopefully the things mentioned in there during the meeting were still captured somewhere, and will show up in a later report….
Our grandson is coming along great. I never thought things could
change so much. I wanted to share this with all of you and to say never give up
Do you remember me crying to all of you about my grandson,my heart breaking
and really believing he couldn’t be any different but something clicked and he
Well he still isn’t up to what he was but he isn’t that far behind.
Don’t give up. It is the hope that keeps the healing going…
You are all in my prayers. Remember “HOPE”
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