FDA Narcolepsy Meeting Video – Watch Now!

By julie | October 4, 2013 |

The Webcast Recordings of FDA’s Narcolepsy Meeting on Sept. 24, 2013 are now available.

Watch Here:

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Posted in Advocacy, Blog, Cataplexy, Children with Narcolepsy, FDA Narcolepsy Patient Meeting, Hypnagogic Hallucinations, Living with Narcolepsy, Medication, Narcolepsy, Narcolepsy Awareness, Narcolepsy Blog, Narcolepsy Diagnosis, Narcolepsy Treatment, What Is Narcolepsy?

3 Comments

TheDreamer on October 5, 2013 at 7:27 pm

So, nothing is captured in the video for comments entered into the Discussion box, except for the last two items near the end of part 1?

Hopefully the things mentioned in there during the meeting were still captured somewhere, and will show up in a later report….

Mar on October 6, 2013 at 1:28 am

Our grandson is coming along great. I never thought things could
change so much. I wanted to share this with all of you and to say never give up
hope.
Do you remember me crying to all of you about my grandson,my heart breaking
and really believing he couldn’t be any different but something clicked and he
woke up.
Well he still isn’t up to what he was but he isn’t that far behind.
Don’t give up. It is the hope that keeps the healing going…
You are all in my prayers. Remember “HOPE”
Mar