Narcolepsy Network Conference 2013

On Oct. 18 – 20, I attended the Annual Narcolepsy Network Conference in Atlanta, GA, where I led four sessions along with selling and signing books. It was a whirlwind weekend – catching up with old friends and meeting new friends. The conference had a fantastic line-up of narcolepsy researchers and clinicians. These doctors were…

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Raising Narcolepsy Awareness at KYSS Conference

On October 12, I had the honor of speaking at Kentucky Sleep Society’s 15th Annual Sleep Medicine Conference in Louisville, KY. The Society’s membership includes sleep doctors and sleep technicians. I gave my favorite presentation – my personal story of narcolepsy from beginning symptoms all the way through the NARCOLEPSY: NOT ALONE campaign. Highlighting the…

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Narcolepsy Network Conference 2013 – See you in Georgia!

This weekend, I will be speaking and signing books at the 28th Annual Narcolepsy Network Conference in Atlanta, GA. This is always an exciting weekend for me – as I get to see old friends and meet many new friends! Books: I’m offering a discount conference rate on personalized signed copies of Wide Awake and…

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Book Signing and Speaking at BRPT Symposium

This past weekend, I had the honor of hosting a book signing event and giving a presentation for sleep technologists at the BRPT Symposium in Louisville, KY (Sept 13 – 14, 2013).  During my book signing, a few attendees said they had already heard great things about my memoir. Others learned of my story for…

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Hello from SLEEP 2013!

This week, I attended and spoke at the APSS SLEEP Meeting, a.k.a. “the Superbowl of Sleep.” Thousands of sleep researchers and clinicians from all over the world attended this meeting on June 1-5 in Baltimore, MD. On Wednesday, I participated on a pediatric narcolepsy panel hosted by Dr. Judith Owens with pediatric specialists, other patients…

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Presenting the Patient Perspective at Social Media for Pharma Conference

On May 15, 2013, I had the honor of presenting “The Patient Perspective” at the Social Media for Pharma Conference in Princeton, NJ. The conference theme intrigued me, with the many FDA regulations surrounding how pharma companies can interact with patients. I learned a lot and met some awesome innovative thinkers at the conference.  I spoke…

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