The Doctors Show Features My Story with Narcolepsy

By julie | February 8, 2015 |

Tune in to the Doctors TV Show this Monday Feb. 9, I’ll be sharing my journey with narcolepsy – including sleepiness, cataplexy, sleep paralysis and hypnagogic hallucinations . See full information here. Watch TV interview online:   Crafting an honest and accurate portrayal of narcolepsy with the Doctors TV Show was a lot of fun.  I was blown away…

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Watch Now: How a Patient Helped Define A New Clinical Endpoint with FDA

By julie | November 9, 2014 |

How did I catch the “Advocacy Bug”? Why is the patient voice important? Watch my TED-style talk on the power of narcolepsy advocates working directly with FDA to build a brighter future. I gave this speech to over 300 clinical trial development experts in the pharmaceutical industry at the Disruptive Innovations Conference in Boston, MA on Sept.…

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Shhhh!!! I’M SLEEPING!!! Living with Narcolepsy’s Hallucinations

By julie | September 28, 2014 |

Dear Hypnagogic Hallucination Version of My Boyfriend, SHHH!! I’M SLEEPING!! Seriously, dude. You come home while I’m napping and wake me up from my precious naptime. I have narcolepsy and I NEED my sleep. But no, YOU are home and apparently, you could care less. I’d tell you to BE QUIET but, hmm, I’m paralyzed. You stomp…

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Narcolepsy on The Doctors Show

By julie | May 21, 2014 |

On Thursday, May 22, 2014, narcolepsy will be featured on The Doctors Show. Please check for local listings here. As a narcolepsy spokesperson and author of Wide Awake and Dreaming: A Memoir of Narcolepsy, I’m so thrilled that the Doctors Show will highlight narcolepsy on TV. Thank you to my brave and beautiful friend and co-advocate,…

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Watch Now: International Narcolepsy Broadcast

By julie | March 9, 2014 |

 Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!

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10 Things You Didn’t Know About Narcolepsy

By julie | March 7, 2014 |

In honor of National Sleep Awareness Week, the top 10 things you didn’t know about narcolepsy:  10. It’s not like the moviesRat Race, Deuce Bigalow: Male Gigolo and Moulin Rouge feature comical characters with narcolepsy. Falling asleep mid-sentence may happen in real-life, but it’s not the typical everyday experience. Narcolepsy is more than sleepiness, involving other serious…

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Join Julie for International Narcolepsy Broadcast on Suddenly Sleepy Saturday

By julie | February 24, 2014 |

Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below…

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Another Restless Night: Poem by Denna Noah

By julie | October 16, 2013 |

Darkness fallsSleep eventually tooSandman fails to allow deep slumberLike he allows for you My body is exhausted And it cannot keep onIt shuts itself downUnfortunately not for long In your eyes I appear to restBut here, where I amIt’s such a mess Shhhhh I hear him comingCircling through my house Walking room to roomI remain quiet as…

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Narcolepsy Infographic: What Is Narcolepsy?

By julie | July 11, 2013 |

I’m so excited to release my narcolepsy infographic! This is the FIRST infographic dedicated to raising awareness about narcolepsy. Please share! Unveiling Narcolepsy Infographic Video: Narcolepsy Infographic: DOWNLOAD FILE Thank you to my amazing graphic designer, Anthony Nesossis.  Thank you to Alex Withrow for his pro video production!  Read about the making of the infographic here.…

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