Sleep Disorder Research Advisory Board
Our Time to Shine! Behind-the-Scenes of Project Sleep’s Recent Advocacy Initiative
I was scared. I didn’t know if you’d come with me on this path. We’d JUST finished the incredible record-breaking Sleep In 2019 campaign, with many of you giving time and spoons to support Project Sleep. The very next day, I learned that our advocacy moment had arrived — yay!! But with a really quick turnaround…
Read MoreToday: Please Ask Your Representative to Co-Sign Narcolepsy Research Letter
Hi friends! I’m so excited to share an amazing opportunity to support critical narcolepsy research THIS WEEK! My Representative, Congressman Schiff of California, is preparing to send a letter to NIH inquiring on the current size, scope, and direction of the narcolepsy portfolio (See Letters). This letter will encourage NIH to support the full spectrum of narcolepsy…
Read More“I Have Narcolepsy. Do You?” on Sleep Success Summit
This Monday, August 8, my presentation, “I Have Narcolepsy. Do You?” will air to tens of thousands of online viewers as part of the Sleep Success Summit. Register for free today. The Sleep Success Summit is a free online event (August 8-15), featuring over 30 experts discussing a wide range of sleep health and sleep disorder topics. With tens of thousands of viewers expected…
Read MoreJulie Flygare Represents Narcolepsy at NIH & NIH’s Funding of Hypocretin Orexin Agonists for Narcolepsy Treatment
The 36th meeting of the Sleep Disorder Research Advisory Board (SDRAB) took place on Feb. 25 – 26, 2013 on the National Institutes of Health (NIH) Campus in Bethesda, MD. The current Board is comprised of five sleep researchers and four patient representatives, including yours truly, the REM Runner! Ad-hoc participants include Michael Twery, Ph.D.,…
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