Medication
Courage is Contagious: Mental Health Provider Speaks Up About Narcolepsy
Meet Sarah, a mental health professional in Chicago who was diagnosed with narcolepsy in 2015 after facing years of mysterious symptoms and misdiagnoses. In this informative iBehaviorCoach Radio podcast hosted by Matt Lawson, Sarah debunks myths and raises important awareness about narcolepsy and the invisible nature of sleepiness. I eagerly tuned in to hear about Sarah’s experience…
Read More“I’ll Never Forget Narcolepsy Now.” -UCLA Medical Student
This fall, I was BUSY spreading narcolepsy awareness to doctors, medical students and researchers across the country. Upon returning from Italy, I started back at my full-time job in pancreatic cancer advocacy first thing the next morning. The following evening, I traveled to UCLA Medical School to give my narcolepsy presentation for first-year medical students…
Read MoreWhen Your Body Says “OH HELL NO” in Italy – Practicing Radical Self Care On The Fly
I felt a scratch in my throat at Stanford’s Medicine X conference. Flying to Italy, pressure spread across my forehead. Waking early the next morning in Bologna, a breeze swirled in through my open hotel window. I smiled and then I coughed… And coughed… And coughed. It was official. I was sick. In Italy. How could…
Read MoreNew York Times editor’s The Big Thing features Wide Awake & Dreaming: A Memoir of Narcolepsy
I’m SO honored that New York Times writer and editor, Phyllis Korkki features my story in her new book The Big Thing: How to Complete Your Creative Project Even If You’re a Lazy, Self-Doubting Procrastinator Like Me, published by Harper on August 9, 2016. Never in a million years did I imagine that Wide Awake and Dreaming would be featured…
Read MoreWhat is my secret? Am I a “typical” person with narcolepsy?
I received the following comment on my recent blog post and wanted to respond here. ************ Dear N. Leptic, Thank you for taking an interest in learning more about my experience with narcolepsy. First of all, I am so sorry to hear about your challenging experience with narcolepsy. It sounds like you are facing some very real and significant…
Read MoreNarcolepsy e-Patient Keynote to over 1,000 Healthcare Leaders at Health:Further Summit
I’m so honored to be a keynote speaker at Health:Further Summit in Nashville, TN on August 23-24, where I’ll join the stage with industry leaders to talk innovation and advanced solutions for the biggest issues facing healthcare. For this audience of healthcare executives and innovators, I’ll debut a new speech called, In Sickness or Health? Breaking Down Barriers…
Read MoreNarcolepsy in the News: CBS News Los Angeles
I’m thrilled to share CBS News Los Angeles’ awesome segment on my experience with narcolepsy. Please WATCH & SHARE (http://cbsloc.al/291UTw6): On Monday June 27, this segment aired during the 5 o’clock evening news, highlighting my sleepiness, cataplexy, and the challenges napping as an adult. The news piece also mentioned my non-profit, Project Sleep, my book “Wide Awake and Dreaming: A Memoir of Narcolepsy”…
Read MoreA Monumental Day: Visiting the White House as a Narcolepsy Advocate
On June 2, 2016, I had the honor of attending the White House/Stanford Medicine X workshop, “Engaging Participants as Partners in Research”, as part of President Obama’s Precision Medicine Initiative. This event far exceeded my wildest expectations. But first, some context. It’s Gonna Be a Good Day: The day before going to the White House, on…
Read MoreMy best hallucination yet! A Visit from the Phantom Foot Massager
During lunchtime today, I went to my nap room at work, cuddled up into my lovely blanket from Ireland and quickly fell asleep. Next thing, I awoke to the most AMAZING foot massage!! Oh la la. My feet were sore from intense yoga classes over the weekend, so I really appreciated the free yummy foot massage from…. um…. my phantom foot…
Read MoreWhat does cataplexy look like? GIF by Eleanor of www.Falling-Asleep.com
Check out this amazing depiction of terrifying symptom of #narcolepsy called CATAPLEXY – created by Eleanor of Falling Asleep: A Narcolepsy Guidebook. Please note: this character is fully conscious and awake yet crumbling to the ground paralyzed. It’s terrifying. For more infographics, blogs and resources: www.falling-asleep.com Commentary by Julie Flygare: I was 22 when my knees fight buckled while…
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