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Viral Narcolepsy with Cataplexy Video

by julie on October 22, 2014

A video of a young woman with narcolepsy and cataplexy has gone viral. Watch below or on YouTube. This is a powerful video and I am grateful to Sarah Elizabeth for bravely sharing her experience! Sarah Elizabeth is primarily experiencing a narcolepsy symptom called cataplexy here. Cataplexy is a sudden loss of muscle tone, resulting in […]

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As founder of Project Sleep, I’m thrilled to unveil our beautiful new logo in this introductory video: Thank you for celebrating this exciting step forward with Project Sleep! Our new website is on its way soon along with other announcements and events. A big thank you to Alex Withrow for his amazing photography and video production.  Please […]

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Science is COOL! I stumbled across these fun videos by The Infographics Show. I especially loved the one about the Brain. “Brains have a similar texture to tofu.” Yum…  Enjoy!

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As a person with narcolepsy, a sleep disorder or chronic illness, what’s your take on exercise? Too tired? Crucial to your health? Improve your symptoms?   My latest video explores my experience as an athlete with narcolepsy and offers tips for successfully incorporating exercise into your life. Come back for more videos soon! Thank you […]

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Tips for Students with Narcolepsy Video

by julie on April 23, 2013

I’m thrilled to release my 14th narcolepsy awareness video! This video offers tips for students with narcolepsy based on my personal experience and various community members’ input. Everyone is different – please share tips in the comments below.  Check back soon for more videos! Thank you to Alex Withrow for his expert video production. Watch […]

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In this video, I discuss my motivations for writing a memoir, along with the greatest challenge and reward of the journey. Watch below or on YouTube.    Thanks for watching – come back for more videos soon! Big thanks to Alex Withrow for his expert video production skills.

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I’m thrilled to release this video, introducing my memoir, Wide Awake and Dreaming: Check back soon for more videos. Thank you Alex Withrow for your expert video production!

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The holidays presents opportunities to raise awareness about narcolepsy. Here are a few tips on communicating about narcolepsy this season. Watch here or on YouTube (1080 HD for best quality).  Thanks so much for watching. Big thanks to Alex Withrow for his amazing video production.  Wishing everyone a happy and restful holiday season! Watch AllWatch […]

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A reader asked me, “How do I handle my recent narcolepsy diagnosis?” I address this question here, in my 6th narcolepsy awareness video. Watch below (in 1080 HD for best quality) or on YouTube. Thank you for watching! More videos coming soon. Many thanks to Alex Withrow for his amazing video production. You made me glow […]

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Discovery Channel Narcolepsy Video

by julie on December 9, 2012

Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story.  Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and […]

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