Unveiling Julie Flygare’s Narcolepsy Advocacy App

by julie on November 10, 2013

Today, I’m thrilled to release Julie Flygare’s Narcolepsy Advocacy Center – the first-ever narcolepsy mobile app available to download for FREE today (instructions below).

Watch Introductory Video:

Download Instructions:
  • From the iTunes App Store or Google Play Store, download Mobile Health Library
  • When download is complete, launch the app and “Accept” the Terms & Conditions 
  • Search using keyword: Narcolepsy, Advocacy, or Sleep  (or Enter App Code: “NACJF”)
  • Tap “Submit” to launch!
About the App:

The app includes a personal daily diary tool, fact sheets, infographics, videos, a powerpoint presentation and more. I hope these resources will help to educate and empower narcolepsy advocates around the world. Don’t have a smart-phone or tablet? View online here.

I’d like to thank Jim, Rob, Dan and the entire Mobile Health Library team for generously giving their time and resources to make this app possible. Together, we collaborated to create a high-quality product for the narcolepsy community.  Thank you to Alex Withrow for his video production. 

Screen shot 2013-11-09 at 7.23.38 PM

{ 13 comments… read them below or add one }

Samantha Vandeberg November 10, 2013 at 3:19 am

LOVE this! Absolutely fantastic, Julie!

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julie November 10, 2013 at 7:13 am

Thank you, Samantha! I’m so proud and excited to finally share it with the community. :-)

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Alex Withrow November 10, 2013 at 8:03 pm

LOVE the app. Your months of hard work really paid off here!

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julie November 13, 2013 at 11:05 pm

Thank you, Alex! Your pro video work really helped this post shine.

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Katie Callison November 10, 2013 at 9:17 pm

Another amazing advancement in helping uss all out! Congratulations and thank you!

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julie November 13, 2013 at 11:06 pm

You’re so welcome, Katie. Thank YOU for checking out the app. :-)

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Blanca November 10, 2013 at 10:01 pm

The app is really practical and i formative. The inly aspect I would comment about is that the user can’t zoom in the text to be able to read better the info available in the app, unless a magnifier is close.
Aside from that I wish I cod get this info in otherlaguages, since I know a lot of PWN that are not English speakers. Julie keep up the fight to stay awake and to educate others on what to us is second nature. God bless and I wish you a lot of Success.

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julie November 13, 2013 at 11:06 pm

Hi Blanca – thank you for your valuable feedback. I wish this was available in other languages too! Hopefully someday soon. Big smiles and many thanks, Julie

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Erin Blitz January 4, 2014 at 5:53 pm

Im roaming home! :-)

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Yanita May 4, 2014 at 5:38 pm

Thank Julie. What a great gift you have giving me…From Toronto sending lots of Love.

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julie May 6, 2014 at 7:52 pm

Yanita – thank you so much for checking out the app! I hope you like this tool. :-) Big smiles and gratitude sent your way, Julie

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Arnold J. Gendelman August 4, 2014 at 10:01 pm

Julie…….you are accomplishing what, what myself and every PWN has dreamt of experiencing, the PWN’s “Impossible Deam.” I think of your accomplishments remembering the production 1776 on aboard way and film. The young lost, confused soldier on the battlefield on his knees singing “is any Body There?”——-
The power of that moment is your accomplishment. You answered it. You are driven, empowered to answer the question for us all and everywhere.
You have earned your wings. You make us proud. You make us smile. You make us get up and be the dream. For me, selfishly , I am thankful and glad you are there, doing what I cannot do, for myself and others. Julie ……FLY—-we love yoy kiddo.

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Valencia August 20, 2014 at 11:35 am

Julie,
How can I transfer information from my IPad to my Amazon Fire Phone from your app? I have notes on my IPad , however I downloaded the app on my phone so I don’t have to carry my IPad all the time.

Thanks,
Valencia

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