Positive Thinking
What does NARCOLEPSY: NOT ALONE mean to you?
What resonates with you? I created this word-collage using popular words from NARCOLEPSY: NOT ALONE campaign blog posts. For me, the words “connect”, “badass” and “tears” stand out. I love that positive and negative experiences are captured here. No matter where you are on your journey, your feelings are valid and normal, its all part of the narcolepsy roller-coaster.…
Read MoreRead My HuffPost Article: “I’m Not Looking To Be Saved From Narcolepsy”
Check out my provocative HuffPost article: “I’m Not Looking To Be Saved”! It’s a dream come true to write on HuffPost, adapting this post from my blog. I can’t wait to raise more awareness via this popular website. Please like and share. Also, check out “Tweeting My Way Through Narcolepsy” on HuffPost by the amazing…
Read MoreNarcolepsy – Am I Sick or Healthy?
If sickness and health are two opposite ends of the spectrum, then where do I fit in? The other day, I battled excruciating eye-burning sleepiness that felt like pure torture/hell. That same day, I also ran 3 beautiful miles in the golden California sunshine. Am I the sickest healthy person you know or the healthiest…
Read MoreRead the book with “not much info on anything” and “nothing to be learned by reading” it!
My book got it’s first one-star review on Amazon and I sort of LOVE it. Read below: I won’t use this forum to defend Wide Awake and Dreaming: A Memoir of Narcolepsy or bash this reviewer. Every reader is entitled to his or her opinion. It doesn’t interest me to persuade him/her/you differently. But…
Read MoreNarcolepsy 504 Plans for High School Students – Tips for Parents by Diana Brooks
REM Runner’s Note: Diana is the mother of Danielle Brooks – an amazing, artistic and athletic young woman with narcolepsy who created www.succeedingwithnarcolepsy.com. In this guest post, Diana offers insightful tips for navigating the school accommodations process and helping your student with narcolepsy succeed. Diana’s Guest Post: 1. You must be an advocate for your child. No…
Read MoreJulie Flygare Narcolepsy Speaker & Author Wins WEGO Health Activist Award 2014
Today, I won the WEGO Health’s Geek Health Activist Award 2014. Wow, what a huge honor! My fellow finalists are so inspiring, I felt lucky just to be included in this group. Although I’ve never considered myself a “geek”, I do love keeping up with technology and social media trends to help put narcolepsy on the…
Read MoreWatch Now: International Narcolepsy Broadcast
Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!
Read MoreTop 13 Inspirational Quotes of 2014 – #5 I Love Sleep
“I love sleep. My life has the tendency to fall apart when I’m awake, you know?”-Ernest Hemingway Happy Sleep Week! It’s National Sleep Awareness Week (March 2-9, 2014). This week, you can sleep in and wear your pajamas to work. Tell them I gave you permission! 😉 Inspirational Quote #6: Inspirational Quote #7: Inspirational Quote #8: Inspirational Quote…
Read MoreTop 13 Inspirational Quotes of 2014 – #6 Celebrating RARE
“We may be RARE, but we’ve got ROAR.”-Julie Flygare Yes, I’m (awkwardly) quoting myself today. Happy Rare Disease Day! The rare disease community is a huge source of inspiration to me. Many struggles I thought were “only narcolepsy”, are quite universal for rare disease patients. We have difficulty finding proper diagnosis. We have limited treatment options, which…
Read MoreTop 13 Inspirational Quotes of 2014 – #8 Crazy Enough
“People who are crazy enough to think they can change the world, are the ones who do.”-Apple Computers Thank you to my dear friend, Sunny Dietra in Florida for sending me this quote! 😎 Inspirational Quote #9 Inspirational Quote #10 Inspirational Quote #11 Inspirational Quote #12 Inspirational Quote #13 Check back for more quotes soon!
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