Narcolepsy Blog

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I’m excited to share, ”Narcolepsy Patients Hope FDA Attention Will Spur Drug Research, Shed Misperceptions” by Brenda Sandburg, The Pink Sheet, May 13, 2013. [View/Download PDF] This great article describes narcolepsy’s inclusion in FDA’s Patient Focused Drug Development Iniative. Thank you Ms. Sandburg and the Pink Sheet for featuring narcolepsy in your publication! More Info:Narcolepsy Selected for [...]

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juile flygare narcolepsy video debunking narcolepsy myth narcolepsy blog

My latest video, “Debunking the Narcolepsy Myth” challenges perceptions of people with narcolepsy falling asleep in the middle of a conversation or while standing and educates about real symptoms. Thanks for watching! Thank you to Alex Withrow for his expert video production. Watch full video series Watch Video #15: Narcolepsy Chosen for FDA InitiativeWatch Video #14: [...]

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free ebook giveaway weekend wide awake and dreaming kindle may 11 may 12 2013

Download the award-winning Wide Awake and Dreaming: A Memoir of Narcolepsy e-Book for FREE on May 11-12, 2013. My book recently won first place in the San Francisco Book Festival Biography/Autobiography competition. Let’s celebrate with free books! When: Saturday May 11 & Sunday May 12, 2013 (12:00am -11:59pm PST)Where: Amazon.com – download free e-book here.Don’t have a Kindle? No [...]

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narcolepsy video 15 narcolepsy fda patient focused drug development initiative julie flygare

I’m thrilled to release my 15th narcolepsy awareness video providing an update on narcolepsy’s placement in FDA’s Patient Focused Drug Development Initiative (PDFFI). Thank you for checking out my video! Big thanks to Alex Withrow for his expert video production.   Watch full video series Watch Video #14: Tips for Students with NarcolepsyWatch Video #13: [...]

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wide awake and dreaming san fran book festival winner 2013

Wide Awake and Dreaming: A Memoir of Narcolepsy won first prize in the 2013 San Francisco Book Festival Biography/Autobiography competition. My heart raced with joy receiving the news today!  Congratulations to Runner-Up (and New York Times Bestseller), Brain on Fire by Susannah Cahalan. I can’t wait to read Ms. Cahalan’s book. Winners will be honored on May 18, [...]

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Let Her Sleep…

by julie on May 6, 2013

Let her sleep for when she wakes she will move mountains

A welcome reminderTo let go,Let sleep wash in,Knowing I will rise again,and take on the world. All in good time. I discovered this image on Pinterest and had to share! Link to print on Etsy. Xoxo, REM Runner

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Julie Flygare Featured on Dr. Don Show

by julie on April 29, 2013

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On Friday afternoon, I had the pleasure of being on the Dr. Don Show to talk about Wide Awake and Dreaming: A Memoir of Narcolepsy. Listen online here. Friday’s show aired live on two Arizona radio stations (KAAA 1230 AM and KZZZ 1490 AM). It was so much fun to discuss my book with Dr. [...]

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julie flygare yoga is my body smiling square

Returning to yoga yesterday was like a homecoming celebration. Last fall, I stopped practicing yoga due to a back injury. My doctor had recommended I take time off from exercising and unfortunately, I took his advice. In truth, his advice was convenient because I wasn’t feeling motivated at the time. Time passed. Too much time.  [...]

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Tips for Students with Narcolepsy Video

by julie on April 23, 2013

narcolepsy interview julie flygare narcolepsy blog tips for students with narcolepsy

I’m thrilled to release my 14th narcolepsy awareness video! This video offers tips for students with narcolepsy based on my personal experience and various community members’ input. Everyone is different – please share tips in the comments below.  Check back soon for more videos! Thank you to Alex Withrow for his expert video production. Watch [...]

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Book Club Features Wide Awake and Dreaming

by julie on April 23, 2013

wide awake and dreaming narcolepsy memoir julie flygare book club 6

This April, the Non-Fiction Book Club of Great Falls and Herndon, VA  featured Wide Awake and Dreaming as their  book of the month! I had the honor of attending their book club meeting last weekend. Before the meeting, I was very nervous. What if they didn’t like my book?  Our hosts, Linda and Brett prepared [...]

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