Narcolepsy Blog

Inspirational Speaking with Toastmasters

by julie on April 21, 2014

toastmasters

Toastmasters rocks! Just yesterday, I won Best Speaker for my inspirational presentation, “Recognizing Naysayers and Pursuing your Dreams”.  Toastmasters International is a communication and leadership organization with clubs around the world. While I’ve always loved public speaking, Toastmasters is helping to quiet my nerves and improve my content and delivery.  LOOKING FOR AN INSPIRING SPEAKER? Consider me for [...]

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book signing

There are many comedic portrayals of narcolepsy in the media – “Mr. Bean”, “Deuce Bigalow Male Gigolo” and “Moulin Rouge” – these films feature characters with narcolepsy who fall asleep while standing and the audience gets a quick laugh. Yet as a law student diagnosed with narcolepsy at age 24, I’d never fallen asleep while standing. [...]

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sleep health congressional briefing april 10 2014

On Thursday April 10, 2014 at 12 noon, the Sleep Research Society (SRS) and the American Academy for Sleep Medicine (AASM) will be hosting an insightful congressional briefing on sleep health and safety in  B-340 RAYBURN HOUSE OFFICE BUILDING. Congressman Mike Honda (D-CA-17) will also be making remarks at this Congressional briefing. SRS leadership will speak [...]

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your dream doesn't have an expiraiton date take a deep breath and try again kt witten inspirational quote julie flyagre narcolepsy blogger

“Your dream doesn’t have an expiration date.Take a deep breath and try again.”-KT Witten About a year ago, one of my best friends, Gail added this quote (IN ALL CAPS) to her email signature. I smiled cause I love inspirational quotes. But then something odd happened – over the past year, I watched Gail make [...]

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I’m so honored to be featured by Women You Should Know in today’s fantastic feature article “You Should Know Someone With Narcolepsy… Her Name Is Julie Flygare”.  The article states: “When Women You Should Know first came to know of Julie, she was described as, ‘a dynamo Rock Star, who accomplishes everything she does with grace, humility, courage, and strength, [...]

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swj thank you

Over 40 people gathered to raise awareness about sleep health and sleep disorders in sunny Jacksonville, FL on March 8, 2014! Sleep Walkers and canine friends in tow, gathered at Bull Park in Atlantic Beach, FL. They registered and collected event t-shirts, wristbands, buttons and festive goodies. Attendees shared their amazing sleep spirit posters. As the local organizer and “Sleep Fairy” for [...]

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School Accommodations for Narcolepsy

by julie on March 30, 2014

school accommodations naroclepsy julie flygare narcolepsy blog author speaker memoir narcolepsy

I compiled this list directly quoting people with narcolepsy and their family members who reported on accommodations received for narcolepsy during education (from grade school to graduate school). I’ve broken the accommodations into categories. Every student with narcolepsy is different. Every school is different. What works best for your student may be a creative combination [...]

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narcolepsy 504 plan for student narcolepsy high school tips parents diana brooks

REM Runner’s Note: Diana is the mother of Danielle Brooks – an amazing, artistic and athletic young woman with narcolepsy who created www.succeedingwithnarcolepsy.com. In this guest post, Diana offers insightful tips for navigating the school accommodations process and helping your student with narcolepsy succeed.  Diana’s Guest Post: 1. You must be an advocate for your child. No [...]

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most of the important things in the world accomplished by people who kept trying when there seemed no hope inspirational quote julie flygare narcolepsy spokesperson author speaker

“Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all.” -Dale Carnegie For years, my book was a long-shot in the dark. I worked toward this goal without knowing if/when I would “succeed”. I faced skepticism and unforeseen [...]

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My Time Makeover Begins

by julie on March 26, 2014

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Living with narcolepsy, prioritizing my time is essential for success. Lately, I’ve been slipping from myself and my goals. Letting the priorities/needs/issues of others fill my days leaves me unable to care for myself. I can’t help others until I help myself. I must find better balance. I must learn to say no.  “Take back [...]

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