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Julie Flygare

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One Step Ahead of Narcolepsy

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Posts Tagged ‘communicating about narcolepsy’

“Soooo, you can just, like, fall asleep?!” Spoken Word Poetry on Narcolepsy

By julie | March 16, 2020 | 0

“Soooo, you can just, like, fall asleep?!” This video moved me to tears. Please watch and share Kara Sulzer’s powerful spoken word poetry on living with narcolepsy. Kara cuts right to the heart of so many key aspects of living with narcolepsy so quickly, discussing the symptoms, the social misperceptions and the BEST question she…

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Second Narcolepsy Awareness Video from the NN Conference: Communicating about Sleepiness

By julie | October 27, 2012 | 19

I’m excited to release my second narcolepsy awareness video, shot at the 2012 Narcolepsy Network (NN) Annual Conference in Cleveland, OH. Thank you for all those who attended my sessions! In this video, I re-cap my conference experience and offer a few strategies for communicating about the excessive daytime sleepiness (EDS) of narcolepsy.  Watch below…

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