What’s the SOCIAL experience of living with narcolepsy?
Your social life experiences with narcolepsy matter! I’m excited to share a new survey that Project Sleep is conducting to better understand the social experiences and unmet needs of people living with narcolepsy and idiopathic hypersomnia. This survey is for individuals diagnosed with narcolepsy or idiopathic hypersomnia (18+ years old). It should take about 10-15 minutes, and…Read More
Join Me in Sydney! Narcolepsy Australia Event
Join Us In Sydney! I’m so excited to head to Sydney, Australia for the “Insight” Peer Event on October 13, 2018 hosted by Narcolepsy Australia! Only a few spots left, so register today: https://register.narcolepsyaustralia.org.au/. I’m preparing a new presentation for this speaking engagement – with exciting updates since I last visited to keynote the Narcolepsy Australia conference…Read More
You’re Invited! Sharing My Inspiring Narcolepsy Presentation in Colorado
On Monday, April 9, 2018 from 5:30 PM to 7:30 PM (MDT), please join me at Children’s Hospital Colorado in Aurora, CO to hear my inspiring personal journey with narcolepsy presentation. People with sleep disorders, parents, siblings, spouses, friends, healthcare providers, educators, are ALL WELCOME, but please RSVP: https://www.eventbrite.com/e/family-narcolepsy-support-group-featuring-guest-speaker-julie-flygare-jd-tickets-42799959832 Hope to see you there and…Read More
Narcolepsy Keynote Speaker in Australia!
Australia, here I come! I’m beyond honored and thrilled to announce that I will be a keynote speaker for the First Patient Conference hosted by Narcolepsy Support Australia on the Gold Coast in Queensland on May 1-3, 2015. Narcolepsy Expert Extraordinaire, Dr. Emmanuel Mignot is the other confirmed keynote speaker! In addition, I will present sessions on…Read More
On My Own, Together: Learning to Accept Help
Diagnosed with narcolepsy in my mid-twenties, the concept of a “care giver” scared me deeply. I didn’t want to be a burden on anyone. Like most twenty-somethings, independence was very important to me. I had recently moved away, chosen an ambitious career path, and planned to survive and thrive on my own. Narcolepsy was clearly…Read More
Narcolepsy in the Classroom – Web Broadcast Event
Families of children and teens with narcolepsy are invited to attend this special event on Saturday February 9th from 2-4 p.m. (EST) at Children’s National Medical Center in Washington D.C. LIVE INTERNATIONAL BROADCAST: You are invited to participate in a live internet broadcast as experts speak on “Narcolepsy in the Classroom” on Saturday Feb 9, 2013 from…Read More
Book Event with Washington DC Narcolepsy Community
This Saturday, Jan. 19, 2013, from 12:30 – 3:00 p.m., my book will be featured at the Narcolepsy & Hypersomnia Support Group of the Greater Washington DC Area. The meeting is open to all people with narcolepsy or hypersomnia and their supporters. I will be selling and signing books. We can discuss topics from my book…Read More