Memoir
Free E-Book Happy Holidays Promotion
On Christmas Day, Dec. 25, 2012, the Kindle edition of Wide Awake and Dreaming: A Memoir of Narcolepsy will be FREE to read for 24 hours. Don’t have a Kindle? Download a FREE Kindle App here to read on your computer, smartphone or tablet (including iPad, iPhone, Mac, Windows 8 PC or tablet, Android phone or…
Read MoreMy Narcolepsy Memoir is Published and On Sale!
I’m thrilled to release Wide Awake and Dreaming: A Memoir of Narcolepsy! Three million people worldwide live with narcolepsy, a fascinating yet little known disorder of the sleep/wake/dream cycle. Purchase Paperback:Amazon.com, Amazon.co.uk, Amazon.de, Amazon.fr, Amazon.it, Amazon.es Kindle Edition: Amazon.com, Amazon.co.uk, Amazon.de, Amazon.fr, Amazon.it, Amazon.es Waking up on Saturday morning, an aura of peacefulness surrounded me. I smiled from ear-to-ear. Later, my boyfriend surprised me with flowers and…
Read MorePraise for “Wide Awake and Dreaming: A Memoir of Narcolepsy”
So excited to share my very first book review here! Written by the amazing blogger Amanda of “Small Steps: A teenager’s look at living with multiple chronic illnesses including an undiagnosed condition, narcolepsy, cataplexy and gluten and lactose intolerance.” Thank you so much, Amanda! What the experts are saying about my book: “Julie’s memoir describes with eloquence…
Read MoreUnveiling Wide Awake and Dreaming’s Book Cover
The story of my book cover begins with friendship and tears. Last summer, I sat at a fancy restaurant booth with one of my best friends, Melissa, in Palo Alto, CA and unraveled a large rolled-up piece of paper – a birthday gift from Melissa! Inside was an original etching called “Dreaming” by the rising talented…
Read MoreDiscovery Channel Narcolepsy Video
Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story. Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…
Read MoreWhen your book becomes a book…
If you set out to write a book, prepare to dig deep. For the longest of excruciating long times, you will be “in the process” and have little to show for it. For yourself. For your dream. Just one Word Doc that you keep re-naming with the new date as time rushes by. You will…
Read MoreJulie Flygare Interviewed About Narcolepsy Advocacy For Siren Interactive Blog
Last week, Siren Interactive invited a few rare disease patient leaders to attend the Rare Disease and Orphan Drug Leadership Congress in Philadelphia. Siren facilitated conversations around the topic of how biopharmaceutical companies can and should engage with patients. In this great blog post, Siren features videos of our experiences and our paths to becoming…
Read MoreJulie Flygare Writes Narcolepsy Patient Perspective Guest Blog Post on PsychologyToday.com
I’m thrilled to share my guest blog post, “Notes on Narcolepsy: Part 3 – From the Patient’s Perspective,” on Psychology Today’s “The Land of Nod” Blog by Dr. Shelby Harris. Dr. Harris is a friend, a clinical psychologist and the Director of the Behavioral Sleep Medicine Program at Montefiore Medical Center. For this post, she asked me to…
Read MoreTouching My Narcolepsy Memoir
“If there’s a book you really want to readbut it hasn’t been written yet, then you must write it.”-Toni Morrison First, I held my book in my head. Next, I moved it to my computer. This weekend, I held my manuscript in my arms for the first time! It was magical (and heavy). I couldn’t help but…
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