Welcome!


I am a narcolepsy spokesperson and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. Living in Los Angeles and speaking across the country, I love opening people's hearts and minds to the real narcolepsy, a neurological disorder affecting 3 million people worldwide. Thanks for stopping by!

Woman with Narcolepsy Versus Colossal Marathon

Woman with Narcolepsy Versus Colossal Marathon

When I hit “publish” on this post, I will be sharing something I’ve been scared ...

2016: A Year in Narcolepsy Advocacy with Julie Flygare

2016: A Year in Narcolepsy Advocacy with Julie Flygare

From the White House to Italy and Ireland – 2016 was an AMAZING year of narcolepsy advocacy ...

Teaching Class at Stanford Medical School

Teaching Class at Stanford Medical School

Recently, I got to teach the Engage & Empower Me class at Stanford Medical School. I shared my ...

Re-Discovering Halloween with Narcolepsy

Re-Discovering Halloween with Narcolepsy

Nine Halloweens ago, I felt like a “monster” – lacking the energy and health to ...

“I’ll Never Forget Narcolepsy Now.” -UCLA Medical Student

“I’ll Never Forget Narcolepsy Now.” -UCLA Medical Student

This fall, I was BUSY spreading narcolepsy awareness to doctors, medical students and researchers ...

A Message to the Narcolepsy Community in Italy!

A Message to the Narcolepsy Community in Italy!

REMRunner’s Note: This post is in Italian for the amazing friends I met during my recent ...

Raising Narcolepsy Awareness in Italy!

Raising Narcolepsy Awareness in Italy!

On Saturday Sept. 24, 2016, I stood outside the fancy lecture hall at the University of Bologna in ...

When Your Body Says “OH HELL NO” in Italy – Practicing Radical Self Care On The Fly

When Your Body Says “OH HELL NO” in Italy – Practicing Radical Self Care On The Fly

I felt a scratch in my throat at Stanford’s Medicine X conference.  Flying to Italy, ...

The Magic of MedX 2016

The Magic of MedX 2016

On my birthday, I traveled to San Francisco to participate in my favorite conference, Stanford ...

Narcolepsy Advocate in Neurology Now Magazine

Narcolepsy Advocate in Neurology Now Magazine

Hot off the presses! I’m proud to be featured in Neurology Now’s article, Self ...

What Does It Feel Like to Speak to an Audience of 1,000 People?

What Does It Feel Like to Speak to an Audience of 1,000 People?

Wow, the last month has been one of the busiest of my life, but all great stuff (as I try to ...

Patient Advocates at Conferences Survey

Patient Advocates at Conferences Survey

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New York Times editor’s The Big Thing features Wide Awake & Dreaming: A Memoir of Narcolepsy

New York Times editor’s The Big Thing features Wide Awake & Dreaming: A Memoir of Narcolepsy

I’m SO honored that New York Times writer and editor, Phyllis Korkki features my story in ...

What is my secret? Am I a “typical” person with narcolepsy?

What is my secret? Am I a “typical” person with narcolepsy?

I received the following comment on my recent blog post and wanted to respond ...