Welcome!


I am a narcolepsy spokesperson and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. Living in Los Angeles and speaking across the country, I love opening people's hearts and minds to the real narcolepsy, a neurological disorder affecting 3 million people worldwide. Thanks for stopping by!

Guest on HuffPost Live: The Psychological Side of Illness

Guest on HuffPost Live: The Psychological Side of Illness

The psychological side of coping with narcolepsy is sometimes as challenging as the physical. I ...

Celebrating 5 Years of Narcolepsy Advocacy

Celebrating 5 Years of Narcolepsy Advocacy

This week marks five years as a narcolepsy advocate. When I published my first REM Runner blog ...

Watch Now: How a Patient Helped Define A New Clinical Endpoint with FDA

Watch Now: How a Patient Helped Define A New Clinical Endpoint with FDA

How did I catch the “Advocacy Bug”? Why is the patient voice important? Watch ...

Watch Now: Narcolepsy PSA Created with Honda Before TV Airing

Watch Now: Narcolepsy PSA Created with Honda Before TV Airing

I’m thrilled to share the narcolepsy public service announcement (PSA) created in ...

Unveiling the new NARCOLEPSY: NOT ALONE website!

Unveiling the new NARCOLEPSY: NOT ALONE website!

I’m so excited to share Project Sleep’s new NARCOLEPSY: NOT ALONE™ campaign ...

Filming the Honda Narcolepsy PSA

Filming the Honda Narcolepsy PSA

Over the past few months, I’ve worked with Honda and a Honda agency, RPA, to create ...

Viral Narcolepsy with Cataplexy Video

Viral Narcolepsy with Cataplexy Video

A video of a young woman with narcolepsy and cataplexy has gone viral. Watch below or on ...

Finding Beauty In Narcolepsy

Finding Beauty In Narcolepsy

Do you know what drives me? What REALLY drives me as an advocate, writer and speaker? Beauty. I am ...

Watch: Disruptive Innovations Interview on Narcolepsy, FDA & Project Sleep

Watch: Disruptive Innovations Interview on Narcolepsy, FDA & Project Sleep

I’m thrilled to share my Disruptive Innovations interview with the Conference Forum’s ...

Shhhh!!! I’M SLEEPING!!! Living with Narcolepsy’s Hallucinations

Shhhh!!! I’M SLEEPING!!! Living with Narcolepsy’s Hallucinations

Dear Hypnagogic Hallucination Version of My Boyfriend, SHHH!! I’M SLEEPING!! Seriously, ...

Bringing the Patient Voice to Disruptive Innovations Conference

Bringing the Patient Voice to Disruptive Innovations Conference

This week, I flew to Boston to speak at the Disruptive Innovations conference. My 15-minute ...

Speaking at Current Concepts in Sleep Conference

Speaking at Current Concepts in Sleep Conference

Over Labor Day weekend, I traveled to Tampa Bay, Florida to speak at the Current Concepts in Sleep ...

What does NARCOLEPSY: NOT ALONE mean to you?

What does NARCOLEPSY: NOT ALONE mean to you?

What resonates with you? I created this word-collage using popular words from NARCOLEPSY: NOT ...

Launching Project Sleep’s New Website

Launching Project Sleep’s New Website

This week, we launched Project Sleep‘s new website! We’ve created a bright site to ...