narcolepsy educational tools
Narcolepsy on The Doctors Show
On Thursday, May 22, 2014, narcolepsy will be featured on The Doctors Show. Please check for local listings here. As a narcolepsy spokesperson and author of Wide Awake and Dreaming: A Memoir of Narcolepsy, I’m so thrilled that the Doctors Show will highlight narcolepsy on TV. Thank you to my brave and beautiful friend and co-advocate,…
Read MoreNarcolepsy 504 Plans for High School Students – Tips for Parents by Diana Brooks
REM Runner’s Note: Diana is the mother of Danielle Brooks – an amazing, artistic and athletic young woman with narcolepsy who created www.succeedingwithnarcolepsy.com. In this guest post, Diana offers insightful tips for navigating the school accommodations process and helping your student with narcolepsy succeed. Diana’s Guest Post: 1. You must be an advocate for your child. No…
Read MoreWatch Now: International Narcolepsy Broadcast
Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!
Read MoreWhy Advocate for Narcolepsy?
Happy Suddenly Sleepy Saturday! I created this infographic to explain why it’s so important we raise up our voices about narcolepsy: 75% of people with narcolepsy are undiagnosed and untreated Only 50% of adults believe narcolepsy can significantly impact overall health, despite serious nature of the disorder Only 70% of adults have heard of narcolepsy – the…
Read MoreHarvard Medical School’s New Narcolepsy Website
I’m so thrilled to share Harvard Medical School’s new Narcolepsy Website – a fantastic user-friendly resource for patients and supporters alike. There are videos, PDFs and basic information about narcolepsy symptoms, diagnosis and treatment along with suggestions for living well with narcolepsy – including tips for daily life, school, work and safety. I had the…
Read MoreUnveiling Julie Flygare’s Narcolepsy Advocacy App
Today, I’m thrilled to release Julie Flygare’s Narcolepsy Advocacy Center – the first-ever narcolepsy mobile app available to download for FREE today (instructions below). Watch Introductory Video: Download Instructions: From the iTunes App Store or Google Play Store, download Mobile Health Library When download is complete, launch the app and “Accept” the Terms &…
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