Guest Blogger
Guest Post: Dear Terrie
Guest post by Terrie in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ——– Dear Terrie, You are about to go on a journey that will take you to many lows along the way. Your doctor will soon confirm that you have Narcolepsy. You will experience all the symptoms…
Read MoreMy Story With DSPS: Guest Post by Peter Mansbach
REM Runner’s Note: This is a very special guest post today. Peter is a dear friend and an amazing leader in the circadian sleep disorder community. He will be speaking at the upcoming NN Conference 2013 and I highly recommend attending his session. Peter is a great speaker – he is kind and humble yet commanding…
Read MorePeople with Narcolepsy Pen Pals: Guest Post by Carrie-Ann Burns
REM Runner’s Note: I have enjoyed watching the “People with Narcolepsy Pen Pal” program take off. This is a beautiful positively-spirited group and I’m thrilled to feature this guest post. Carrie-Ann’s Guest Blot Post: I would just like to thank Julie Flygare for the opportunity to share this group among her fans, followers and friends! I…
Read MoreRandom Remmie Joins NARCOLEPSY: NOT ALONE Campaign Guest Post by Julie Barfuss
Meet “Random Remmie” – she’s had narcolepsy for as long as she can remember. She hates making her bed, she has a lot of pajamas, slippers, and a blue blanket. She’s really random. CLICK IMAGES TO VIEW SLIDESHOW: About the Artist: Julie Barfuss has lived in Utah her whole life. She doesn’t remember not being…
Read MorePausing to Say I Love You: Guest Post by Michelle Hemingway
REM Runner’s Note: I met Michelle at my first NN Conference five years ago and we’ve remained dear friends ever since. In this post, Michelle describes participating in the NARCOLEPSY: NOT ALONE campaign. Michelle’s Guest Post: I was honored to participate in the Narcolepsy: Not Alone campaign. And that is exactly how my family and friends felt…
Read MoreA Narco’s Tale: A Poem by Maureen Caden
I was diagnosed in 2003 and like many of us went through many years with unanswered fears. I knew I was not lazy as some days became rather hazy. I would will myself to stay awake I didn’t even have time to bake a cake. For sleep time would come This thing had me under…
Read MoreMy Twisted Fairytale: A Poem by Shelby Stein
I feel like a princess locked in a tower. My Narcolepsy is my dragon guard. My weight loss is the lava moat that makes me cower more. My evil witch is merely my medicine, At first we didn’t see the harm, For it had a magic disguise to seem so beautiful. My poison apple of my…
Read MoreTaking on Narcolepsy as a New Mom: Guest Post by Cherae Robinson
REM Runner’s Intro: Meet Cherae – a teen mother, college graduate, medical assistant, 20 year old woman with narcolepsy. Young people with narcolepsy may worry about having children, wondering if they’ll have the energy to care for a child. Fair enough. Yet I’ve met many inspiring parents living with narcolepsy. I’m thrilled to share one amazing story…
Read MoreIreland’s First Suddenly Sleepy Saturday Narcolepsy Awareness Event: Guest Post by Elaine Butler Armstrong
REM Runner’s Note: Narcolepsy advocate and my dear friend, Elaine Butler Armstrong recently organized Ireland’s First Suddenly Sleepy Saturday Narcolepsy Event! I invited Elaine to share this momentous occassion with us. Elaine’s Guest Blog Post: It’s always a joy to meet up with the members of S.O.U.N.D. (Sufferers Of Unique Narcolepsy Disorder ) and the children…
Read MoreA Magical Place & Time: First Sleep Walk in Waikiki – Guest Post by Bridgette Snyder
Photography by Tony Wyatt “Knowing that I have the support of such wonderful people gives me strength I never thought I would have.” -Bridgette Snyder REM Runnner’s Note: Aloha! I had the honor of working with Bridgette to start the first Sleep Walk in Waikiki. It’s my dream to host Sleep Walks all over America. I asked Bridgette to…
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