How did I catch the “Advocacy Bug”? Why is the patient voice important? Watch my TED-style talk on the power of narcolepsy advocates working directly with FDA to build a brighter future.
I gave this speech to over 300 clinical trial development experts in the pharmaceutical industry at the Disruptive Innovations Conference in Boston, MA on Sept. 11, 2014. As the “patient presenter” for this conference, I felt a responsibility to make a meaningful impact on behalf of all patients – to give a passionate plea for the importance of the patient voice.
I was honored to showcase the narcolepsy community’s FDA Initiative and advocate for greater patient representation in clinical research development. I hope I made you proud!
Also, my interview on debunking the narcolepsy myth, Project Sleep and the FDA initiative:
OTHER RECENT SPEAKING ENGAGEMENTS:
UPCOMING SPEAKING ENGAGEMENTS:
- Patients as Partners in Philadelphia, PA (March 16, 2015)
- Narcolepsy Australia Patient Conference in Queensland, Australia (May 1-3, 2015)
- Nova Southeastern College of Medicine and Health Professions Division in Ft. Lauderdale, FL (May 7-9, 2015)