Top 13 Inspirational Quotes of 2014 – #6 Celebrating RARE

by julie on February 28, 2014

We may be RARE but we've got ROAR julie flygare narcolepsy spokesperson rare disease day 2014 global genes“We may be RARE, 
but we’ve got ROAR.”
-Julie Flygare

Yes, I’m (awkwardly) quoting myself today. Happy Rare Disease Day! The rare disease community is a huge source of inspiration to me. Many struggles I thought were “only narcolepsy”, are quite universal for rare disease patients. 

  • We have difficulty finding proper diagnosis.
  • We have limited treatment options, which are often very expensive.
  • We often feel isolated and alone, yet 1 in every 10 Americans has a rare disease. 

Rare diseases are the underdogs, so how is it that our community is at the FOREFRONT of patient engagement and health policy efforts?

It’s because we’ve got ROAR. We’ve been pushed down and overlooked… which has sparked a great passion to stand back up again,  united and stronger than ever, to tell the world WE ARE RARE & WE MATTER.  

Thank you to Global Genes for making rare disease so hip. Thank you to my friend, the amazing #RarePOV leader Stephanie for supporting my efforts. I wish I was in Washington DC today, spreading awareness with Rare Disease Legislative Advocates. I’m cheering for you from Los Angeles, CA!

Inspirational Quote #7:
 inspirational quotes change the secret to change is to focus all of your energy no on fighting the old but on building the new socrates
 Inspirational Quote #8:
 inspirational quotes julie flygare the people who are crazy enough to think they can change the world are the ones who do
Inspirational Quote #9: 
 inspirational quotes narcolepsy the thing that is really hard and amazing is giving up on being perfect and beginning to work on becoming yourself
Inspirational Quote #10: 
 inspirational quotes in the end only three things matter how much you loved buddha inspring quote
Inspirational Quote #11: 
 inspirational quotes inspiring quotes potential quotes inner voice quotes if you are always trying to be normal you will never know how amazing you can be
 Inspirational Quote #12:
 inspirational quotes inspiring quotes potential quotes inner voice quotes you are not a burden you have a burden which by definition is too heavy to carry on yoru own
 Inspirational Quote #13:
 inspirational quotes inspiring quotes potential quotes inner voice quotes 13

 

{ 1 comment… read it below or add one }

Carrie-Ann Burns March 5, 2014 at 1:43 pm

Thanks Julie sooo much for creating this one, it makes me want to cheer… awkwardly :P

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