Today: Please Ask Your Representative to Co-Sign Narcolepsy Research Letter

by julie on February 20, 2018

Hi friends! I’m so excited to share an amazing opportunity to support critical narcolepsy research THIS WEEK!

My Representative, Congressman Schiff of California, is preparing to send a letter to NIH inquiring on the current size, scope, and direction of the narcolepsy portfolio (See Letters). This letter will encourage NIH to support the full spectrum of narcolepsy research and in responding, NIH will provide Congress and community advocates with a clear overview of recent advancements and emerging opportunities. Congress Schiff has circulated a Dear Colleague letter (See Letters) and is encouraging his fellow House Representatives to join the sign on letter to NIH.

Your House Representative will sign the letter, but only if asked to do so by you (their constituent) and the deadline for signatures is Friday, March 2nd

Take Action Today

To take action, it is important to contact your House Representative’s Health Legislative Assistant directly (it’s an extra step over using a general contact form, but an important step given quick timeframe to ensure rapid response.)

  • Go to and enter your zip code in the upper right corner to find your Representative’s DC office (202) number. Call the office and request the email or voicemail for the Health Legislative Assistant.
  • Alternatively, if you would like assistance, please contact the Sleep Research Society’s Washington Representative, Peter Herzog, at 202-544-7499 or herzog@hmcw.organd he will assist you with e-mailing the Health Legislative Assistant directly.
  • Use the draft message below to email or leave a voicemail for the Health Legislative Assistant.

Draft Message

My name is _________ and I am a constituent from [your city, state]. I’m contacting you today in regards to a congressional sign on letter that Congressman Schiff plans to send to NIH recognizing recent advancements in sleep research and requesting an update on the narcolepsy research portfolio. Please sign on to this letter by contacting Anthony Theissen at or 5-4176 before Friday, March 2nd. This letter is important to the community and I would appreciate your assistance with this request.

[Optional: Share your personal story or interest in this issue in 2-3 sentences.]

Thank you for your time and your consideration of my request. I look forward to hearing from you in this regard.

[Name, Address, City, State, Zip]


Thank you for your support! Questions or feedback? Email:

Full details at: 

**IMPORTANT**: Follow up via email or phone if you don’t hear back within 2-3 business days. Set a calendar notification to remind yourself. Emphasize the March 2nd deadline.


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